Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Leaky gut, meat, and platelets

  • Hal9000
  • Topic Author
  • Offline
  • Give me all your platelets and nobody gets hurt
More
9 years 1 month ago - 9 years 1 week ago #58467 by Hal9000
Leaky gut, meat, and platelets was created by Hal9000
Can someone help me? I was reading a mother's theory about how she eventually got her child's ITP into remission. Can't remember where
I read it. Could have been on PDSA or somewhere else.

The theory was if one has a leaky gut that consumption of meat was her child's problem. That meat gets into the blood stream and the immune system couldn't properly distinguish between meat and platelets. Once her child was off all meats for a month, counts went up to normal.

Anyone?

Please Log in or Create an account to join the conversation.

  • EmilyK
  • Offline
  • Diagnosed jan 2015 at age 50 with 13,000 platelets.
More
9 years 1 month ago #58474 by EmilyK
Replied by EmilyK on topic Leaky gut, meat and platelets
I do not know where you saw that but I think all of us are very different. I have not had meat for over 30 years and yet got ITP a few years ago. There is no action to take that guarantees high counts or low counts. Some of us do well on some medications and some do well on others, some see changes from diet changes and some do not. You cannot chase every suggestion. Do what works for you and what you can keep doing for the long term. Good luck.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 1 month ago #58475 by Sandi
Replied by Sandi on topic Leaky gut, meat and platelets
That's kind of a weird theory and I don't remember seeing that. The body can't tell the difference between meat and platelets? From what I've read, leaky gut is mostly caused by gluten. Many Paleo eaters believe that the Paleo diet helps leaky gut, and Paleo includes meat.

Please Log in or Create an account to join the conversation.

  • Hal9000
  • Topic Author
  • Offline
  • Give me all your platelets and nobody gets hurt
More
9 years 1 month ago - 9 years 1 month ago #58497 by Hal9000
Replied by Hal9000 on topic Leaky gut, meat and platelets
Well, did a search on PDSA for the word 'meat'. Couldn't find the post. Must have read it somewhere else.

The search was not without reward though. I would like to thank 'zomzombie' and his hematologist for a great idea. Combine Danazol with Promacta. Brilliant. Take two drugs both with a reputation that includes remission possibilities.
pdsa.org/discussion-group/7-treatment-general/27991-danazol-dancristine-any-experiences.html#40342

With a remission possibility when given alone, these drugs must have the ability to repair one type of ITP - for those folks that have that single type. So, if one has more than one type of ITP, the chances of success should be higher when these two drugs are combined.

Please Log in or Create an account to join the conversation.

More
9 years 1 month ago - 9 years 1 month ago #58498 by tj1989
Replied by tj1989 on topic Leaky gut, meat and platelets
I am not sure whether this is what you looking for.
pdsa.org/discussion-group/6-general-itp-discussion/29372-diet.html?limitstart=0

In this thread, Minnow mentioned "According to the website of Dr John McDougall, (who recommends a vegan diet for autoimmune disease sufferers) the immune system regards animal protein as foreign protein and sends out the attack squad, thus giving it more work to do."

And Owensmom said her son has much better count after vegan diet.

Did you mix these information together?
The following user(s) said Thank You: Hal9000

Please Log in or Create an account to join the conversation.

  • Hal9000
  • Topic Author
  • Offline
  • Give me all your platelets and nobody gets hurt
More
9 years 1 month ago - 9 years 1 month ago #58501 by Hal9000
Replied by Hal9000 on topic Leaky gut, meat and platelets
Right on the money tj. Thanks !

It is odd that I remembered the situation as one comment instead of several. After reading the entire thread, it was definitely Owensmom that I was thinking of / remembering.

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.