Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

out of desperation- lets see the result

More
13 years 4 months ago #29763 by kentot
out of desperation- lets see the result was created by kentot
i was diagnosed last june 1 2012 of itp with the count of 5, roller coaster ride, Ive been ok for 2 months when I go to my home country -philippines, but the saddest thing there are no available medicine n Philippines... Now im back here in Dubai, and my platelet went back again to 5, I have bleeding in gums, sometimes in nose, out of desperation one guy the cashier form the hospital told me to try honey+ black seed oil and garlic, he gave me one person to arrange it fo me, one arab guy came and sold me this, the taste was horrible now Im taking one spoon in a day with empty stomach, I will do my cbc on thurs and if I dont have any increase with my count I will stop the honey + black seed+ ginger.

ITP makes me to stop dreaming, makes my life horrible all the money which Im earning just go out of my medicine without insurance I dont know how I can go through my life with this.... Just praying everyday....

I tried revolade, but it seems not workin on me now.

Dont know what to do, I feel desperate.... Why there is no cure with us???
The following user(s) said Thank You: kym

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 4 months ago #29768 by Sandi
Replied by Sandi on topic out of desperation- lets see the result
Kent - the sad truth is that there are many, many illnesses that do not have a cure, and ITP is just one of them. There are remissions though, but you might just need to find the treatment that will get you to that point. I'm not familiar with the treatments that might be available to you, so I can't really help you there. You need to find yourself a good doctor.

Don't stop dreaming. Don't let ITP take away your life. You can still walk, talk, see, hear and experience everything the world has to offer. There is always hope.
The following user(s) said Thank You: kym

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.