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Exploring Treatment Options for Toddler

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3 years 11 months ago #72369 by Eagann
Exploring Treatment Options for Toddler was created by Eagann
Hello! My son has been suffering with ITP since he turned 2. He is now 3 and has been hospitalized 5 times for IVIG infusions. Our hematology team is exploring other treatment options. I was wondering if anyone would be willing to share what has worked best for him/her and what, if any, side effects he/she has experienced or been made aware of. Just trying to get a good smattering of options to discuss with the doctors. Thank you in advance!

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3 years 10 months ago #72371 by MelA
Replied by MelA on topic Exploring Treatment Options for Toddler
Hi!
So sorry to hear your son has ITP.   It may help if you could add what your son's count is and does he have symptoms of low platelets.  
I hope you can get his counts up to a good count!  Keep us posted!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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3 years 10 months ago #72372 by Eagann
Replied by Eagann on topic Exploring Treatment Options for Toddler
Thank you for replying! His counts have been in the 2-7 range when he has had infusions (5 times in the last year). We avoid blood draws now because we are very in tune with his symptoms and know when he drops below 10,000 just by looking at him, so we don’t have a consistent count. But I believe he hovers around 40-60 on a good day.

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3 years 10 months ago #72375 by MelA
Replied by MelA on topic Exploring Treatment Options for Toddler
I can understand avoiding the blood draws unless absolutely necessary - it is good you are in tune with his symptoms and can tell when his count drops.  His did get very low didn't they.  I wish I had an answer for you but I really don't know anything about ITP in children, just in adults like me.   I am hoping someone in the know will see your post and reply!! My thoughts are with you!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.