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Ivig benefit of 2 vs 1 day

  • Cindy1
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  • For 7 months, platelets crashed (as low as 1,000) every 10 days between IVIG treatments. I got cured 10/2017 after taking parasite destroying medicine and Rife US tx.
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8 years 6 months ago #61171 by Cindy1
Ivig benefit of 2 vs 1 day was created by Cindy1
Hi,
Getting ivig for 5,000 platelet count. Dr gave me option 1vs2 days. Thoughts.
I am thinking one.

He wants me to do dEx. burst. I'm thinking yes. Thoughts.

Bone marrow bx back within a week. Will keep doing promacta 75. All drs are pushing rituxin pretty soon. Never did big nplate trial but do I care?
Sigh

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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8 years 6 months ago #61172 by Hal9000
Replied by Hal9000 on topic Ivig benefit of 2 vs 1 day
Oh pooh. Here it was looking like 75 mg Promacta was contributing last week. Blah.
Looking over your IVIG summary post, all the lengths look similar (excluding 7 wk one). Didn't you do an IVIG without Dex and it lasted much shorter? Half the time? The list is 16, 15, 14, 18 days.
ITP Types and Treatments by HAL

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  • D.Mann
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  • Diagnosed October 2016 Steroids, IVIG, Rituxin, Promacta, Spleen removed, Rituxin again. Currently weaning off Promacta and Prednisone.
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8 years 6 months ago #61173 by D.Mann
Replied by D.Mann on topic Ivig benefit of 2 vs 1 day
It depends on your IVIG response. You don't want to get too high, but definitely need to get to a safe level. 75mg Promacta at the same is worrisome for me, but I have a good IVIG response normally.

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  • Cindy1
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  • For 7 months, platelets crashed (as low as 1,000) every 10 days between IVIG treatments. I got cured 10/2017 after taking parasite destroying medicine and Rife US tx.
More
8 years 6 months ago #61175 by Cindy1
Replied by Cindy1 on topic Ivig benefit of 2 vs 1 day
Thx for your reply. I usually get to over 100 with the one day ivig. Left hospital obs unit so I'm stickin w 1 day and a 40 mg dex burst for 4 days.
I hope you are getting stability. It is crazy what you are going through!
My thoughts are with you.
Cindy

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  • Cindy1
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  • For 7 months, platelets crashed (as low as 1,000) every 10 days between IVIG treatments. I got cured 10/2017 after taking parasite destroying medicine and Rife US tx.
More
8 years 6 months ago #61176 by Cindy1
Replied by Cindy1 on topic Ivig benefit of 2 vs 1 day
I need to get that info together tomorrow and send it to you. Thx. Cindy

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