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AZithromycin helping ITP

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12 years 3 months ago #39114 by lana10123
AZithromycin helping ITP was created by lana10123
Hello everyone. i just recently found this site and i have found a wealth of knowledge in it. So thank you all that post and answer questions!

My daughter Aleena was diagnosed with ITP in November. Her counts are usually under 20, but a few times have spiked to 24,45,and 140(while on azithromycin). She is seeing a pediatric hematologist, she is using the watch and wait approach. She had said we will treat when she is around 10,000-12,000. Aleenas options are IVIG or steroids because she is O-.

So, this Tuesday her counts were 12,000. We left the hospital before her results were out, so i got a call instead. Her Dr. prescribed a lose dose of the antibiotic azithromycin. Why? Because the last time she was on that for a skin infection her counts hit 140.

My questions are ... Is this a common thing? Should I want her to be treated with IVIG? or should I hold off and wait some more.

Its just all new to me. I feel like as a parent i know something is wrong with my baby, and i feel the need to fix her. I know that ivig has some bad side affects. but i just want her to be better.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 3 months ago #39124 by Sandi
Replied by Sandi on topic AZithromycin helping ITP
How are her symptoms?

I wouldn't say that antibiotics is a traditional way to treat, but may be worth a shot. Maybe an underlying infection is causing her platelet to drop, you never know. IVIG isn't going to fix it. It will just give her a temporary bump.

I'm curious to know if it works, so keep me posted if you go ahead with it.

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12 years 3 months ago #39129 by eklein
Replied by eklein on topic AZithromycin helping ITP
I just had a course of Azithromycin last month for pneumonia. It was the first time I've had antibiotics in 15 or 20 years. While I was taking them, and very sick, my platelets dropped to 40 (they had been around 200). A week after I finished the drug, and was feeling better, my count was back up to 200.
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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12 years 3 months ago #39154 by lana10123
Replied by lana10123 on topic AZithromycin helping ITP
after 2 days on the antibiotics her counts went up to 14,000. Her next appt is on Tuesday. Hopefully they will be higher. I can tell by looking at her that they are getting higher, her face isn't as pale and i haven't noticed any newer bruises.

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