In hospital :(

Winnifred

I have a full right sleeve, left arm one large upper, one bow on each calve, one on right foot, large lower back piece, one on back of neck, one on right shoulder, large one one on outer thighs. My husband has done all he doesn't tattoo anymore he will tattoo but I haven't been worked on in years.

31k feeling good just dealing with the period once again and it is getting old.

Amber!

Good work on the 31K! I am happy for you again! I have been having some issues. Blood in the mouth, blood blister in the mouth, and some bruising. But I keep a going! If you can so can I!

Jeffrey

I would love to have a sleeve but in my job it wouldn't be acceptable. I just had my foot done OUCH small lizard. my right shoulder(back), My right calf(side), Left thigh fairly huge and inside left arm. Planning on one that will go from my lower back to up between shoulder blades.

31k wonderful news!

Oh I do have a star on Petra side of stomach and I wear ling sleeves at work...

Jeffrey
I keep going!

Amber, 31k is awesome!!! Looks like something is working! Hope you have a great weekend!

I went to infusion center this morning they said i was 2k then went to doctors office 13k WTH!!!

Did you have 2 blood draws?

Yes, the lab that is with the infusion center isn't very good

I like 13 better than 2 any day!

Yes but have they been reading it wrong the last month????? I have to go to the infusion center on Sunday but going back to doctors office on Monday for counts. I'm sure Sunday I will have to get platelets.

Very often, when I speak to different people about the same count they somehow interpret the results differently. So one person may say 12 and another 15, only ever a small difference so I never bother to question it. But such a difference between 2 blood tests - how bizarre!

How are you feeling? Any symptoms?

Amber,
There is the possibility that your platelets went up after the first draw. That happened to me one time. Platelets went from 12K to 33K in the same day. Hope you are feeling okay.

Jeffrey,
How are you doing? Are you currently on any meds for your ITP? Hope you are feeling better, too.

Amber,

I thing a little stern questioning is in order, but your counts could have varied for who knows what reason. I was just getting ready to ask you how you are doing! Tell you what, you say they were 13k and I will swear to it! LOL You keep the faith girl. It does seem you may be on the up swing.

DeeDee I had IVIG before my knee surgery last month but it did not push things up like the first one did and I got sicker that anything with it. It was not pleasant for 3 days. but it got me through the surgery. I am not on anything else. I told my oncologist that I was not going to treat just to be treating, there has to be a reason. I am having some issues now. Blood blisters in the mouth, blood in the mouth in the morning, a butterfly rash on my face, blue finger tips last night when I was cold, I am always cold! LOL I am bruising and I have low grade headaches that come and go. I am probably close to needing to go to the hospital, but I as I said on another post I will not go until I have to! I am back to training hard again and I feel good, tired and sore from the RA, but I push through it and make myself do it. I will not surrender. I am bullheaded! LOL

How are you DeeDee?

Jeffrey

Amber,

Hope you are doing better today; and, hopefully, those platelets don't drop!


Jeffrey: I am like you. I am doing fine right now (in remission), but I've never lasted over 4 years. And when I crash--I crash really hard and then my platelets don't want to budge (they stay 1-4). I, too, had lots of IVIG and didn't feel too well after having it. The last time I relapsed, I had it 5 times and my platelets wouldn't budge. Finally, the doctor gave it to me over a 24-hour period, and this did the trick. I've decided if and when I crash again, I am going to be very careful about taking any meds--I may not even treat. What I found for myself that within 2 weeks after crashing, if I take good care of myself (good rest and food), the symptoms start to go away--but it does take about 2 weeks. And, even with my platelets under 10k. I am the type of person who doesn't do well with a lot of meds--in long term I sometimes end up sicker. But, I did do the Decadron pulses which might have put into remission (at first, steroids and Decadron wasn't working). Even the doctor isn't sure! And, I continue to swim and run which makes me feel better (and I love riding horses!). My hemo said I am the only patient he has had like myself. LOL

Dee Dee

6k today HGB low so now I know why I'm winded. Running more test and waiting for platelets to come up from Atlanta.

It's not unusual for platelet counts to vary with two different draws. Platelets fluctuate and analyzers are calibrated differently.

6k today and RGB lower than normal, but I was on my period for almost a month. WBC, RBC low but they have been low.

I am feeling more winded than normal....cold and sleepy

Amber,

Get well soon kid! I just wish there was something that I could do for you.... Keep the faith girl!

Jeffrey

DeeDee,

You keep it going! I am so proud of you!

Jeffrey

Amber,
You are always in my prayers. Keep your faith hope you do better soon.

Jeffrey,

You are an inspiration, too! We always need to try and be positive and see the good things in life!

Dee Dee

Yesterday 9k and today 15k no platelets since 10/30/13....

Ok! Another step forward! Whoo Hoo!

Jeffrey

Congrats! It seems like your counts are rising.

they want me to get counts at least once this weekend but i'm taking it off and will get re count on Monday.

I don't blame you a bit! Enjoy! :lol:

Jeffrey

Try to rest up and enjoy the weekend! Wishing you higher platelets

I don't blame you either.

Hoping your counts keep going up

I hope you enjoyed the weekend!

weekend was good since I didn't have to give up any blood and counts this morning 27K... I have a doctor re check on Thursday with CBC, hope they keep going up....