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fourth round of retexmab

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13 years 10 months ago #25196 by farida
fourth round of retexmab was created by farida
fourth round for rituxan , my son's count is 337k stile on 10 mg of prednisone , last week was 515k , dropped 200k in one week , what is that mean , how can i know if it did work for him or not , so frustrated

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 10 months ago #25206 by Sandi
Replied by Sandi on topic Re: fourth round of retexmab
Farida:

You're not going to know if it worked for a while yet. If the good counts last at least another 8 weeks, then you can probably say that Rituxan kicked in.

Dropping that much is okay. The steroids are wearing off slowly. He is at a very average count right now. It's perfect. You really don't want it too high.
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13 years 10 months ago - 13 years 10 months ago #25231 by Dean
Replied by Dean on topic Re: fourth round of retexmab
Counts will bounce around even during and after Rituxin. I have had two rounds of Rituxin treatments. I responded slow, even several weeks after the last treatment. It can be quite Frustrating, just be patient.

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  • amberyard
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  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
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13 years 9 months ago #25648 by amberyard
Replied by amberyard on topic Re: fourth round of retexmab
I've had 4 rounds also and went from 32000 last week and now 25000. Doctor added 3 more rounds.. Very frustrating.

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13 years 9 months ago #25666 by Dean
Replied by Dean on topic Re: fourth round of retexmab
Not sure why you are receiving 3 more rounds already. 4 is the usual treatment, then wait to see how Platelets respond. Counts will fluctuate during and after treatment.

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  • amberyard
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  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
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13 years 9 months ago #25675 by amberyard
Replied by amberyard on topic Re: fourth round of retexmab
That is what I keep reading also. I go back on Friday to see the Doctor,CBC, then infusion. Trying to get a list of questions ready for him, since every time I go in I have a massive brain fart. Thanks for the reply.

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13 years 9 months ago #25705 by Dean
Replied by Dean on topic Re: fourth round of retexmab
Good Luck!! I feel you should wait and see how you will respond to the first treatment.

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13 years 9 months ago #25713 by Gort
Replied by Gort on topic Re: fourth round of retexmab
Seven weekly treatments in a row? I don't think I've ever heard of anyone doing that before.
--Steve
Living with ITP since 1967.
"Abandon negative action; Create perfect virtue; Subdue your own mind. This is the teaching of the Buddha."

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  • amberyard
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  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
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13 years 9 months ago #25803 by amberyard
Replied by amberyard on topic Re: fourth round of retexmab
now is 8 treatments, last count was 59,000. ask the same thing and the doctor said he is trying for me not to be on meds for the rest of my life.?.?

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13 years 9 months ago #25876 by Dean
Replied by Dean on topic Re: fourth round of retexmab
Farida, how is it going??

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13 years 6 months ago #28021 by farida
Replied by farida on topic Re: fourth round of retexmab
update ,
count yesterday is 330k :laugh:
i hope that is a good sign ,
thank for asking

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13 years 6 months ago #28023 by Dean
Replied by Dean on topic Re: fourth round of retexmab

farida wrote: update ,
count yesterday is 330k :laugh:
i hope that is a good sign ,
thank for asking


Great!!
Do not get discouraged if it drops again. That is quite normal.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 6 months ago #28034 by Sandi
Replied by Sandi on topic Re: fourth round of retexmab
That's wonderful! I think you now know that it did work!
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13 years 6 months ago #28038 by farida
Replied by farida on topic fourth round of retexmab
i hope sandy , for long time this time, DR told me to try retuxmab before the surgery but i was worry . Thank GOD , he need to relax some time , pray for him

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.