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promacta (or eltrombopag) decrease ferrum?

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13 years 11 months ago #24696 by yakup
is there anyone with using promacta (or eltrombopag)with decreasing ferrum?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 11 months ago #24739 by Sandi
Do you mean ferritin? If so, I would imagine it could be a side effect. It can also occur for no real reason. A few people here, including me, have had low ferritin without having used Promacta. I just take an iron supplement.

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13 years 9 months ago #25751 by yakup
yes ferritin. and now B12 decreased too. my hemotolog said that no side effect seen with ferritin derease. she send me gastroenterology for colonoscopy.

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13 years 9 months ago #25757 by eklein
How are your counts? Sounds like your doctor wants to rule out gastro bleeding.
Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 9 months ago #25760 by Sandi
Were those tested prior to Promacta? Could they have been low for a while?

I've had problems with both low ferritin and low B-12 (and low Vitamin D and low potassium, and magnesium).

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13 years 8 months ago #26532 by nancyc
I have had ITP for 18years and nothing seemed to work for me I was always needing IVig Which I got horrible side effects for 3-4 days after the 4 day infusion. My Dr put me on Promacta 75 mg So far no side effects (except one and the Dr said it is not from the promacta but i say it is, I used to have natural curly hair and guess what it is now straight) But my platelets have been staying in the 90 to 100's. Whenever i would get a cold or flu my platelets would drop to 3. Since I've been on the Promacta the lowest they drop when I get sick is 45 which is a safe level for me.

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13 years 8 months ago #26533 by nancyc
Please excuse my stupidity I can't seem to guide myself through these discussion groups, but since i am here and i already wrote about my experience with Promacta, I too have low vitamin D. Just found out a few days ago but it never occurred to me that it was from the Promacta....MMMMMM. I am glad I am back

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13 years 8 months ago #26535 by Ann
Almost everyone has low vitamin D nowadays so I wouldn't put that down to any particular drug. We are all encouraged to cover up and use sun screen and it means far less vitamin D is made by the body.

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