itp

hi, can anybody help me? ive had ITP six times now, the first being in december 2008, then august 2009 november 2009, then i had my spleen removed, nothing for two years, until january 2012, treatment steroids again, which i am not good on, got reduced to two and a half mg in february, ITP returned again treatment protein invusion for five days 70mg of steroids again, then when plaitlets were over 200 got a new drug called revolade 50mg, then stopped with steroids after reducing them slowly, plaitlets shoot up to 700 after two weeks, so got taken off the revolade, first week plaitlets down to 520, four days later, hello ITP back plaitlets down to 8, going back to hospital today again to see consultant, been every week since january, what other treatment can i have? every time the ITP comes back it gets worse, cant eat anything coz of blood blisters in my mouth, bruisen and red marks all over my body, even on the palm of my hand, please help me, thankyou ruth,

Maybe you could try a lower dose of revolade or try romiplostim (Nplate) instead. Or there are other immunosuppressants like mycophenolate (CellCept) and azathioprine (Imuran). See what your haematologist suggests.

Maybe it's just a difference in word usage, but except for the period after the splenectomy, you probably have had ITP all along these past four years. The different treatments rarely "cure" ITP. Most of us try to find treatments that will keep us at a safe (and comfortable) level. It isn't surprising when you stopped all treatments that your platelets would drop. Ann's suggestion seems sound to me--rather than stop Revolade all together, perhaps try a lower dose. Were you able to tolerate the Revolade? Were you able to tolerate low treatments of steroids?

I'm so sorry that your symptoms are so uncomfortable.