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cytoxan

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14 years 1 month ago #23126 by musicguy60
cytoxan was created by musicguy60
tried everything, promacta, rutuxian, steroids, ivig, nothing worked, what is everybodys thoughts on cytoxan, and is anyone on it, what about side effects, my wife going on almost 2 years with itp, very depressing, lend me your thoughts. thankx

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 1 month ago #23131 by Sandi
Replied by Sandi on topic Re: cytoxan
It has been years since I've even seen anyone mention Cytoxan for ITP.

What are her counts?

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14 years 1 month ago #23135 by Ann
Replied by Ann on topic Re: cytoxan
According to the guidelines bloodjournal.hematologylibrary.org/content/115/2/168.full there are reports of people developing leukaemia after using it. Scary stuff. What about Nplate. It's said to have 85% success rate which is better than any other drug out there.

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14 years 1 month ago #23136 by musicguy60
Replied by musicguy60 on topic Re: cytoxan
the counts are from 11 to 51, she also has to have platelet transfusions also

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14 years 1 month ago #23137 by musicguy60
Replied by musicguy60 on topic Re: cytoxan
n plate is not workinh

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14 years 1 month ago #23138 by musicguy60
Replied by musicguy60 on topic Re: cytoxan
the counts vary from week to week

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 1 month ago #23139 by Sandi
Replied by Sandi on topic Re: cytoxan
Have you had a second opinion? Platelet transfusions don't work for ITP. Counts of 11 to 50 are typical with N-Plate. What are you trying to do?

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14 years 1 month ago #23140 by musicguy60
Replied by musicguy60 on topic Re: cytoxan
the platelet transfusions keep her out of er, we r trying to b at 40, or 50 all the time, has not been 11 lately, but under 50 we have to get platelets sometimes twice a week, even with all this the platelets are not at a good steady level, if we could b 50 and above all the time would b great, but we r not, now with n plate not working the doctor says to try cytoxan, it is scary, with all this she has diabetes

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  • weirdjack
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14 years 1 month ago #23147 by weirdjack
Replied by weirdjack on topic Re: cytoxan
I also do not understand what the platelet transfusions are achieving.
I'm with Sandi, I would get a second opinion (immediately).
It really seems like y'all are being put through some unnecessary things there.

.

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14 years 1 month ago #23148 by Ann
Replied by Ann on topic Re: cytoxan
I don't understand the urgency of getting counts above 50. Unless there's internal bleeding issues, I'd be happy with counts going between 11 and 50, it sounds ideal to me. It's above 10 which is good and it's best not to be too high on Nplate because of the risk of clotting at high counts. The last three counts I had before antibiotics sent me silly high, are 44, 25 and 28. I'm pleased with that.

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  • Melinda
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14 years 1 month ago #23149 by Melinda
Replied by Melinda on topic Re: cytoxan
Platelets from a transfusion will be treated by the body just as if they were "homemade" platelets - they will be destroyed.

Are you in a small city or a large city?

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14 years 1 month ago #23157 by musicguy60
Replied by musicguy60 on topic Re: cytoxan
near atlantic city nj

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