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Help needed for Michellek

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14 years 1 month ago #22603 by milly
Help needed for Michellek was created by milly
Hi all,
I have received an email today from a friend of Michellek, she is back in the hospital after having her spleen removed less then two weeks ago with a count of 9k, the doctors are now suggesting a four week treatment of rixitun (spelling)?.

I am hoping that those of you with more knowledge then me can give her some help and support.

Thank you
Milly

I think Michelle may be able to read the advice but she cannot log on to ask.
There is no practice run in life.

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14 years 1 month ago #22604 by eklein
Replied by eklein on topic Re: Help needed for Michellek
Rituxan working or not does not appeared to be related to having a spleen.

Hope you are feeling better soon Michelle -
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 1 month ago #22616 by Sandi
Replied by Sandi on topic Re: Help needed for Michellek
Sorry to hear that. I was wondering why they made the splenectomy out to be such an emergency...it shouldn't have been. Rituxan is a viable next treatment. I certainly hope it works.

Good luck, Michelle!

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14 years 1 month ago #22643 by Dean
Replied by Dean on topic Re: Help needed for Michellek
Be patient. Rituxin can take awhile to kick in. I have had two rounds of Rituxin.
Good Luck Michellek!!

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14 years 1 month ago #22750 by Mark
Replied by Mark on topic Re: Help needed for Michellek
Michellek

So sorry to hear of this trouble! These bodies of our can be so frustrating!

Have you considered Nplate as a treatment?

Hang in there- please try to take each day one day at a time-

Mark

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14 years 1 month ago #22770 by milly
Replied by milly on topic Re: Help needed for Michellek
Quick update on Michelle, she is still in hospital. Her last counts was 14 she is having weekly Rituxen and Decradon ( I think that is what it is) She is having a bit of a hard time so I am sure she appreciates the support.
There is no practice run in life.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 1 month ago #22776 by Sandi
Replied by Sandi on topic Re: Help needed for Michellek
Hang in there, Michelle! It will get better!

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14 years 1 month ago #22805 by milly
Replied by milly on topic Re: Help needed for Michellek
Another update Michelle is still in hospital her count is now 114k.
There is no practice run in life.

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14 years 1 month ago #22810 by CindyL
Replied by CindyL on topic Re: Help needed for Michellek
Hey, Michelle, great count! Hope you're feeling better and out of the hospital soon.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.