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Rituxan treatment

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14 years 2 months ago #21896 by debrasla
Rituxan treatment was created by debrasla
My 22 year old son is on his 3rd treatment today and his platelets are lower this week! I just dont get it, last week they went up to 64000 and today they are down to 43000. He has one more treatment next week. Then what happens? How do you know if it works?

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14 years 2 months ago #21897 by debrasla
Replied by debrasla on topic Re: Rituxan treatment
oh, and he is still on prednisone, he is down to 100 mg day from the 200, they are weaning him off every 3rd day and cutting it 10mg every 3rd day

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14 years 2 months ago #21899 by eklein
Replied by eklein on topic Re: Rituxan treatment
Probably the Rituxan hasn't kicked in yet. Often it kicks in on the 4th or 5th week, sometimes longer. So any platelet changes are probably not related to the Rituxan treatments yet.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 2 months ago #21904 by Sandi
Replied by Sandi on topic Re: Rituxan treatment
Debra - Erica is right. Rituxan doesn't work that fast, so counts will just do their normal gig and bounce around until Rituxan kicks in.

You know if it works when you begin to see normal counts. For some people, that can take up to 12 weeks after the first infusion. The average response time is 4 to 8 weeks after the first treatment.

His counts are still in a safe zone, so try not to worry.

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14 years 2 months ago #21910 by Dean
Replied by Dean on topic Re: Rituxan treatment
Don't worry, that is how I responded to Rituxin. My count went up and down during treatment. The rise was slowand took several weeks after the last treatment.
The following user(s) said Thank You: debrasla

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14 years 2 months ago #21918 by debrasla
Replied by debrasla on topic Re: Rituxan treatment
ok, thank you all for the responses and we will relax then, so good to know

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14 years 1 month ago #22667 by seema09
Replied by seema09 on topic Re: Rituxan treatment
Dear friends
On 28 feb I had nose bleed . very little though. and my platelet count was only 5000.
i have finished my 4th dose of Ruituximab yesterday and now my doctor says i would have to wait for another 8 weeks to conclude if Rituximab is a success or failure.

I have now stated the 4th set (4 days each set) of Dexamethasone tablet (40 mg)

I love this website. thanks for reading.
I'll update my progress.

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Platelet Disorder Support Association

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.