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ITP returns after 6 yr remission Nplate suggested!

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14 years 5 months ago #19815 by nrcoach
ITP returns after 6 yr remission Nplate suggested! was created by nrcoach
After 6 years of bliss i noticed mouth blisters and petechea on my legs and forearms. A trip to the ER confirmed my fears. A platelet count of 1000. After 3 bags of platelets, 2 ivig, rituxin, and dechadron I bounced up to 57,000. Can't think of anything that I did differently to cause the sudden drop. My new hemotologist (my last has since passed away) suggested Nplate. Anyone have any experience or knowledge to pass on? Anything would be appreciated.

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14 years 5 months ago #19823 by Ann
Replied by Ann on topic Re: ITP returns after 6 yr remission Nplate suggested!
I wrote in the other thread about my experience with Nplate, but you might want to wait until the full course of rituxan is done and you are sure it isn't going to work or you won't know what is working.

Good luck with whatever you decide to do.

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14 years 4 months ago #19911 by nrcoach
Replied by nrcoach on topic Re: ITP returns after 6 yr remission Nplate suggested!
Saw my hemo yesterday and he wants to start the ball rolling on N-plate. Counts went down by half since Fri and he's not sure of a strong response from rituxan this time. Not sure I'm ready to start....it seems to me that once I do all other options end!

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.