spleen out

This is all new to me and im nervous about things...so if anyone has any information or suggestions im willing to listen....
..I've only been diagnose with ITP for about 3 month as of August my platelets started out at only 2000 now there up there but i still have so many question and worry.i have ended up spending 3 months in the hospital with ITP before they decided that i had to ave my spLeen out. Unfor my body was not responding to another treatment.
..unfor. with being decommissioned for so long i lost use my legs and had to go to physical rehab ( because the steroids and everything) has this happen to anyone else before...
Also with my spleen coming out i have really bad indigestion and nothing seems to be working to make it stop any suggestions,,,,,,and they had to cut me open no laperscopic surgery apperenty i had to spleens and that coman but my left side is so numb and hurts i can't sleep on my left side yet (it's been about 3-4 wks now) how long does the numbness and pain take befor it actuly goes away or atleast feels better and i have such a heayness in my body on th left side that won't go away how to control that.

Gosh. You seem to have had a very rocky ride so far with ITP. Here's hoping the splenectomy does the trick and you have many long years in remission.

I'm not sure why you were in hospital all that time. Did you have a lot of bleeding issues? If so, that would explain the fast ride to splenectomy.

I'm sorry you're still having post-operative problems. I'm sure someone will come along soon who has had the open surgery and will tell you how it was for them.

What do the doctors say about that numbness? That was really a long time to be in the hospital, that is not common. I had an open splenectomy and was in the hospital for 5 days after. I felt back to normal about 4 weeks after that. I had numbness over my whole stomach during that time, it gradually got better over 6-8 weeks. Still, 10 years later I have a small line of numbness right on the scar line, so I guess that is permanent.

im still hurting at this momnt and the numbness wouldn't bother me if it wasnt all ovr my left side not just by my scar.

It took a long time (6 months or more, maybe a year) for all the residual numb spots to disappear after I had my spleen out. There are also a few spots which had icy/hot sensations for a long time.

The problem is that if a nerve is cut (which happens when they make the incisions), it takes a long time to grow back, and since nerves can service a large area, one small nerve can leave a big numb spot. The open surgery probably means a lot more nerves got cut than I had, too. My surgery was, fortunately, able to be done laparoscopically.

It all eventually went away. It was just a minor annoyance after a while. A LOT better than messing around with Dr.'s appointments and medications for platelets.