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Promacta and Hair Loss

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14 years 6 months ago #19337 by bc2789
Promacta and Hair Loss was created by bc2789
I've been on Promacta for about two months now and have been noticing that I'm losing a lot more hair than is normal for me. At first I thought it was a side effect of withdrawal from prednisone, but it's lasted so long that I think it might be due to the Promacta. Has anyone else had this side effect?

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14 years 6 months ago #19338 by bc2789
Replied by bc2789 on topic Re: Promacta and Hair Loss
For background, I'm female and 22 and should definitely not have any other reasons to be losing hair

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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14 years 5 months ago #19360 by dru
Replied by dru on topic Re: Promacta and Hair Loss
I have not been on promacta but definately get hair loss after going off prednisione-it seems to last for about 3-4 months if I have been on prednisione for more than a few weeks.

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  • weirdjack
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14 years 5 months ago #19367 by weirdjack
Replied by weirdjack on topic Re: Promacta and Hair Loss
Sounds more Prednisone related to me.
I've taken Promacta for nearly two years now. I did my first year at 75mg dosage, then this past year at 50mg dosage. I haven't noticed any hair loss. I'm 58, so every hair counts.
.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 5 months ago #19375 by Sandi
Replied by Sandi on topic Re: Promacta and Hair Loss
The effects of Prednisone can linger for months after stopping the drug. I'd bet it's the steroids.

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.