Platelet Disorder Support Association

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NEW ITP

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15 years 3 months ago #6411 by DanC33
NEW ITP was created by DanC33
Hello everyone! I was just released from the hospital after 5 days! My count went below 1000. After several dosages of prednisone (no results) they used WINROE. It brought my count to 10000 (still very low) Now they want to take my spleen. I am curious about other / less invasive measures.

THANKS!!!!!
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15 years 2 months ago #6413 by JazzenJanzen
Replied by JazzenJanzen on topic Re: NEW ITP
Hey Dan!
If you hunt around in the forums, you'll come across a lot of stories and experiences of others. I got a ton (and still am) out of this site when I was diagnosed this past March.
I did Prednisone for 2 months, and then got off it, cause it wasn't worth it to me.
I'm currently not treating, and just hanging out with a count that hovers around 14K. But that's just me.. I'm not a bleeder, and it's my own personal decision not to treat. My hema is nervous for me.... sort of.
Good luck to you!
Kate
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15 years 2 months ago #6414 by stevek
Replied by stevek on topic Re:NEW ITP
hello .yes i agree look around .my experience was different I was diagnosed and hospitalized at 19k and very responsive to steroids.but became steroid dependant I chose to have my spleen taken out.i was 47 and I did not like the rituxin idea at my age and data available was not encouraging..I have gone amost a year not with 1 bout of steroids and other bouts clinging to 19k and as high as 200k since spenectomy.I am pleased to say that i am off of steroid and happily at 200 k..but the past shows that a simple cold sore can put you in the hospital..I think now my body has leveled off and sept 10 2010 wwill be 1 year from my surgery..I hope this helps .....steve
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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