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Worrying about itp diagnoses

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6 months 6 days ago #73850 by Keely!
Worrying about itp diagnoses was created by Keely!
Hi so my anxiety level is through the roof! During my pregnancy they noticed my platelets were dropping. They dropped to around 50 by the time I gave birth. All very dramatic. Anyway 2 weeks later my levels were up at 244 so that was that. 
A year later they were at 160 and now at 140. So I went to my drs and they told me that 12 years before my pregnancy they ranged between 132-140. No massive drops just constantly low with a mpv of 12. So large platelets. Anyway I got referred to a haematologist who basically looked at me and said you’ve not got blood cancer you’ve got itp. But itp to me goes up and down. Other than when I’m pregnant mine stays the same. 
He reluctantly offered to look at my blood under a microscope which I’m due to have a call about. He just seemed very unbothered. I really need some advice on whether it does sound like itp that I have. 
All of my other blood work is great. All normal and has been the whole time. 
It just doesn’t make sense to me. If anyone can advise that would be great. 

Thank you
Keely  
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6 months 6 days ago #73851 by Itpjourney
Replied by Itpjourney on topic Worrying about itp diagnoses
Persistently low platelet count is ITP. So, you seem good. Maybe he meant you had a one time low platelet, that, if was persistent would be ITP.
The following user(s) said Thank You: Keely!
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6 months 6 days ago - 6 months 5 days ago #73852 by Itpjourney
Replied by Itpjourney on topic Worrying about itp diagnoses
 Now, look up Gestational Thrombocytopenia. Google is the way to go. Says your only "problem" here, most likely, is that another pregnancy, you have more chance of it happening again than the mother next to you. Don't read that as its the end of the world in the event of another pregnancy. Not saying that... It would have to bother you at the worst time, though, wouldn't it?
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6 months 5 days ago - 6 months 5 days ago #73853 by Itpjourney
Replied by Itpjourney on topic Worrying about itp diagnoses
In the interest of comparing to what your doctor is doing, here is some suggested protocol for your exact situation:  ashpublications.org/blood/article/121/1/38/31058/How-I-treat-thrombocytopenia-in-pregnancy

Sorry for the scientific stuff that could overwhelm you again. Just an example of all the stuff out there, if you can understand it.
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6 months 5 days ago #73854 by Keely!
Replied by Keely! on topic Worrying about itp diagnoses
Thank you. I’m more concerned of my platelet count normally. I’ve been told I have itp as count at 140 with large mpv. Been this for years. Apart from when I was pregnant. But to me itp has flare ups. Mine just sits at this figure other than when I’m pregnant.
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6 months 5 days ago - 6 months 5 days ago #73855 by Itpjourney
Replied by Itpjourney on topic Worrying about itp diagnoses
Well, yeah, you're a bit on the low side, but a consistent 140 is 40 above ITP, so sounds pretty good, for now anyway.

I'm not really up on platelet size. Big ones are supposed to be younger, right? So are you worried that that means your platelets are being destroyed by your immune system?

Yes, I guess if you are actually out of the preferred mpv range, that could be a problem. I'm glad you're pointing this part of the CBC out. Since its only abbreviated, I haven't looked closely at mine. I see mine is in the middle.
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6 months 5 days ago #73856 by Keely!
Replied by Keely! on topic Worrying about itp diagnoses
That’s interesting. What is your platelet count?
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6 months 5 days ago #73857 by Keely!
Replied by Keely! on topic Worrying about itp diagnoses
I’m worried it isn’t my immune system and it’s cancer and I’ve been misdiagnosed
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6 months 5 days ago #73858 by Itpjourney
Replied by Itpjourney on topic Worrying about itp diagnoses
I guess I should have said my mpv is high normal. I see it goes from 10 to 12 and 1/2. When I was at 12 and 1/2, my platelets were 21. When my platelets go up, sometimes 450 to 500, I see, expectedly I guess, lower mpv. Now, my platelets don't fluctuate that way for no reason. Its just me trying to get the medication right. 

Maybe you might want a bone marrow biopsy if you are worried about cancer. Mine wasn't too bad a procedure, my doctor explaining what he was doing as he did it. It was negative. You'd have to run this by your doctor. I could be off on this being something for you to do.