Hemangioma on Spleen?

I was diagnosed with ITP almost 15 years ago and have been considered "low but stable" and not requiring treatment ever since.  My counts have ranged from the low 80s with occasional dips into the low 50s.  Covid vaccine had no impact but when I finally got covid in March of 2023, my platelets shot up to 115 (immune response) right after, and then back down into the 50s, where they have stayed ever since.  

I have been having some GI issues and my GI doc just ordered an abdominal ultrasound to check my liver and gallbladder as well as my spleen because all of a sudden she's concerned about my low platelets (!?) Full disclosure, I do not have the report on the ultrasound yet (just had it yesterday) but the tech told me I have a benign cyst on my kidney and also a hemangioma on my spleen.  She said neither was anything to worry about, but not to tell my dr that she told me anything, lol!  And not to google anything!  

Of course, I've been all over the internet trying to find out if the hemangioma could be related to my ITP but am coming up empty (other than some kind of rare syndrome that seems to affect infants).  

Has anyone ever heard of this, or had any experience with it?  I'm a little frustrated because my hematologist has been very laissez-faire about treatment, just monitoring things, which is fine, except when I had the covid-related increase and decrease, he started talking about actual treatment to bring my platelets up for the first time, and I had to remind him that that precipitous rise and drop was covid-related, and statistically not that significant.  (would be nice if he would read his own notes on past appts, but I digress!).

I don't have significant symptoms from my ITP which I guess is the other thing that has helped me avoid treatment over the years.  Except for the occasional petechiae.  I'm just now super curious that I have had ITP all this time and now am finding out there's this hemangioma thing on my spleen.  And I guess worrying a bit that this is going to stir things up with my hematologist and he might pressure me to start treatment (or even get a splenectomy?)

Thanks for listening and for any thoughts or experience you might be able to share.

That tech had no business telling you that you have a benign tumor on your kidney - how does she know it is benign? She had no business telling you that you have a hemangioma on your spleen either!! She had no business whatsoever telling you any of that, shame on her !!!

Will the ultrasound results also go to your hematologist? If not, they should. Also now your GI doctor and your hematologist should probably be in touch with each other.

And if I were you I'd call my hematologist and let him know about the ultrasound and what the tech mentioned and ask him to get with my GI doc to go over the results and also ask if I need to be worried about what I was told.

I recently was given 4 days of prednisone only because I needed gum surgery and my count for some unknown reason had dropped to 57k and my hematologist wanted it a bit higher for the surgery otherwise he wouldn't have treated for that count. I can't even recall what count my hematologist says needs treating. Oh and a number of years ago I had the real flu, my count increased to 401k & I was told I was cured (knew I wasn't) and a week later the count was back down.

Keep us posted please - I'd not heard of hemagioma on the spleen. But today an ITP friend had a splenectomy due to his spleen becoming very enlarged - hopefully he will get an answer from the pathologist as to why this happened - he's had ITP for a long time.

Thanks for your response.  I actually really appreciated the tech giving me that info.  She literally said that she hates when patients go away thinking they are dying or have something seriously wrong when they don't, and having to wait on their doctor for results.  The thing on my kidney was a cyst by the way, not a tumor.  She said they are extremely common particularly in folks over 50, which I am.  On the hemangioma on the spleen, it was kind of hard to miss that she was taking extra time and effort to get a good image of something since she kept having me change position to try to get a good angle on it. I said, what are you looking at, and that's what she told me.  Hey she told me not to google it when I got home, but you know I did!  I am not really stressed about it, and find it very interesting given my chronic ITP that there actually is something going on with my spleen. It's almost a relief to be honest because as my original hematologist explained, "ideopathic" just means there's no known cause, which personally I find frustrating. If you google "hemangioma on spleen" you will see it's considered 'rare' but doesn't require treatment unless it ruptures (also rare) or causes symptoms.  It will be interesting to get the report.  I've already messaged the GI place asking about the results because I've checked all my medical portals (general, GI, hematologist) and it's not showing up anywhere, although the appt shows up under my general because it's through that hospital system.  I hate having all these different portals to log in to!  

Other interesting factoid:  'strawberry' birthmarks on the skin are hemangiomas!  They're a build-up of blood vessels.  Mine just happens to be on my spleen.

I'm mentally prepared for them to order further imaging on my spleen but we'll see.  

Update: ultrasound report popped in my medical portal this morning and was consistent with what tech said although it didn't even mention the cyst on my kidney. Just measurements of everything and mention of "a few" hemangiomas ('hyperechoic lesions') on spleen, the largest of which is 1cm in diameter. My spleen is in a normal size range (9.9cm) based on what I read online. I already sent the report to my hematologist, who replied recommending a repeat sonogram in 6-12 mos to make sure hemangiomas remain stable in size. I already have a standing appt with him for Oct and he said we could discuss further at that time. I look forward to peppering him with questions about it!

I just figure that if there is something to worry about my doctor/s will let me know.

That's why I really like my HMO, only the one portal and every doctor I have can see test results and emails to/from doctors, prescriptions, communicate with each other and me etc.

Things sound ok, an d your spleen is normal size - glad to hear that!! Good you have that October appointment so you can discuss things with your hematologist - make a list of your questions to take with you