Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

IVIG and Rituximab

More
1 year 5 days ago - 1 year 5 days ago #73691 by MelA
Replied by MelA on topic IVIG and Rituximab
I'm always happy when my count is 60k or higher. A few years ago my then hematologist said I could have brain surgery (we were talking, I wasn't going to have brain surgery) with a count of 50k - this year my hematologist (wanted one closer) didn't like my 57k for gum surgery so had to take pred to bring it up and I got shingles between the pred & my body not liking what was going on, I didn't mind the gum surgery at all it was my body that spoke).

Just remember that count is bouncing around all the time - you can't maintain a certain number! 2 weeks ago my count was at 104k, 52k, 139k & checking it again today - no treatment just blood work .

Keep us posted!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
More
1 year 5 days ago #73692 by WTow47CLondCty
Replied by WTow47CLondCty on topic IVIG and Rituximab
Theoretically 60 is a good number for surgery but it all depends on the surgeon. Some are happy with anything over 50 and others want the count to be around 100. I am well aware that blood count is a floating number. When you have to stick two 16Ga needles in your arm and pull them out after 3 1/2 hrs for dialysis 100,000 is a good number to shoot for to prevent excessive bleeding. Also it is not what the blood count is but how sticky the platelets are which is hard to tell. Extended bleeding at the canulation site in hemodialysis is no fun. I've been there.
More
11 months 4 weeks ago #73696 by WTow47CLondCty
Replied by WTow47CLondCty on topic IVIG and Rituximab
Well last week my platelets dropped to 49,000 but then this week they went up to 240,000. Hoping my Hematologist will agree to just an N-Plate shot this week and see what happens
More
3 months 2 hours ago #73931 by alikks
Replied by alikks on topic IVIG and Rituximab
Wow! Reaching 240 is impressive! What do you think contributed to this?
More
2 months 4 weeks ago #73933 by WTow47CLondCty
Replied by WTow47CLondCty on topic IVIG and Rituximab
Well I am taking a Ruxience infusion and an N-Plate shot weekly plus I was Prednisone pills for about 3 weeks for gout and my platelets are running between 20 and 27,000 Dialysis folks think I need a fistulagram because my graft is really beat up and full of Hematomas!! Interventual Radiology won't touch me with my platelets in the 20's.
The joys of ITP
More
2 months 2 weeks ago #73946 by WTow47CLondCty
Replied by WTow47CLondCty on topic IVIG and Rituximab
Well I am getting Decadron IV, Ruxience IV and N-Plate shots weekly and my platelets are still only in the 20's Because IR (Interventional Radiology) didn't want to look at my Hemodialysis Graft my Nephrologist ordered a Ultrasound of the Graft. The US showed high pressures on both ends of the graft indicating stenosis. It needs to be addressed to prevent graft failure!! My Neph is going to talk to IR. I will find out what the plan is this week. Nervous. Will talk to my Hematologist about switching from Ruxience to IVIG.
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use