Hi! My husband was diagnosed with ITP 3 years ago. It's been the usual roller-coaster ride, but with the help of a fine hematologist, he's doing all right-- BUT for the last few months, he's had an itchy rash that won't quit. It's pretty much everywhere, tho it moves around. Our hemo and derma MDs have consulted, and are baffled. They thought it might have been from the rituximab infusions 6 months ago, but have pretty much ruled that out. Skin biopsies are inconclusive. They think it's eczema/dermatitis-- but nothing helps, not even steroid shots, Dupixent, anti-itch creams, etc.
It's kind of a misery. We're wondering if anyone else has had this situation...? And we'll appreciate any suggestions about dealing with it!
We're happy to be part of this group. It's wonderful.