Now that my ITP has relapsed, and this time around my platelets are not really bouncing back like they did the first time I was on prednisone 12 years ago (yes, I enjoyed a LONG remission), my dr is thinking we should start Promacta. I like the looks of efficacy on that.
But Promacta has this little disclaimer - not to be used for people with MDS. So I'm like, "what's that". It's a precancerous disease that turns into Leukemia.
Has anyone here ever had to get extensive treatment to ruse out MDS? What were the factors? Was it not responding to Prednisone? Or something else?
