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Overseas travel with low platelets

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3 years 1 month ago #72595 by RR01
Hello,
Has anyone traveled overseas like Long flights with low platelets? I am talking really low like 23000. I am planning to travel 18 hrs(flight travel). Prednisone bumps up my numbers usually but I don't want to be on it considering the Covid situation, especially on a long flight like this. Any suggestions?
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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3 years 1 month ago - 3 years 1 month ago #72598 by mrsb04
Replied by mrsb04 on topic Overseas travel with low platelets
I flew from UK to Australia and back my count was 21 when I returned. I had no extra meds nor any problems. I had checked with my haemo what count I needed to fly before I left.  She told me above 1. 
The following user(s) said Thank You: RR01
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3 years 1 month ago #72607 by MelA
Replied by MelA on topic Overseas travel with low platelets
I moved to Japan shortly after getting out of the hospital having had a count of 11k and dropping, a bone marrow biopsy, a diagnosis of ITP, on 60mg of prednisone and not knowing if I'd have a hematologist there.  Had a fantastic hematologist in Tokyo.  From there we moved to Hong Kong, I flew Beijing, Cairo, Rome, London, the US, Thailand, Singapore - took the Jet Foil to Macau and to China - and really didn't check my count before doing so, and on a lower dose of pred.    What is funny (in my mind) is back home in the States I would not fly to New Jersey for a nephew's wedding because it was during the SARS outbreak and they were saying it could be spread on planes.  

I have no suggestions really - are you staying in one location? for how long?  
Have you talked with your hematologist about where you are going & what to do if you feel your count went down?  Can you take prednisone with you in case it is needed.   

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: RR01
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3 years 1 month ago #72608 by RR01
Replied by RR01 on topic Overseas travel with low platelets
Thanks mrsb04  and  MelA  !! That gives me a boost of confidence and yes I will be carrying Prednisone with me just in case. Will be staying in just one place. It is just the 18 hrs travel I am a bit worried about. 
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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3 years 1 month ago #72610 by mrsb04
Replied by mrsb04 on topic Overseas travel with low platelets
RR01
I wouldn't worry about the journey too much. Mine home from Oz took 35 hours!!!!
What I would suggest is taking some TXA tablets with you too.  Then should you have any mucosal bleeding i.e. nosebleed or oral blood blisters. I carry a couple with me in my purse at all times just in case.