Platelet Disorder Support Association

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Doptelet

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3 years 8 months ago #72103 by GaryG1
Doptelet was created by GaryG1
Anyone been on Doptelet longer then 3-6 months?
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3 years 8 months ago #72104 by sacapli
Replied by sacapli on topic Doptelet
I have not ever been on Doptelet, but I would like to know how this goes for you :-)
  • MariLinTx
  • Offline
  • Ret. RN/attorney, wife/mom/grandma ,Dx. 2/1/22. Fear has worn off as Doptelet is working. Now just trying to be an active family member and deal with,ITP, CAD, labile BP, CKD, back pain & mobility issues; neuropathy; migraines, and more. : (
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3 years 6 months ago - 3 years 6 months ago #72294 by MariLinTx
Replied by MariLinTx on topic Doptelet
I’m on it one month now. I’m also curious as to an answer. I’m having great results! Count went up to 283 after two weeks on it that doc dropped it to three times a week! Labs Friday will tell how that dosage is doing. 
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3 years 6 months ago #72296 by GaryG1
Replied by GaryG1 on topic Doptelet
Hi MariLinTx,
Im so glad to see that the Doptelet pills are increasing your platelet counts. I have had ITP for over 40 years. I recently switched from my N Plate Treatment to try the Doptelet pills. I was on them for three months and was still having weekly counts in the 40-60 range. I started with the initial dosage and increased up to the next level of dosing with no improvement.
I have decided to switch back to N Plate injects now that they were at least able to increase my counts before up around the 100 level. I am also on Plavix and Eliquis and Beta Blockers so my Hemo would like to see my counts above 100 even though I don’t have any bleeding or bruising issues in the 5o range, Guess I’ll be driving 45 minutes very week to get the injection again.
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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3 years 6 months ago #72297 by mrsb04
Replied by mrsb04 on topic Doptelet
GaryG1

Is it not possible for you to self inject your Nplate?
  • ecoclayton
  • Offline
  • Diagnosed with ITP 5/23/19
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3 years 6 months ago #72298 by ecoclayton
Replied by ecoclayton on topic Doptelet
I've been on Doptelet for 2 years (3/2020).  Started at 20mg/day and it kept my platelets between 55 - 75 until I took the 2nd Moderna vaccine (4/2021) when it dropped my platelets into low 20's.  My numbers were jumping up and down (20's - 50's) so in January 2022 I upped the dose. I am now taking 40 mg/day M,W,F and 20mg T,TH,S,S and platelets have been 60-70 since. I don't really have any issue unless I am in the mid to low 20's. (mainly bruising and tired in the afternoons). I am having some liver issues when I drink even minor amounts of alcohol. I don't know if that is from Doptelet or not, but I never had that problem before.
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3 years 3 months ago #72453 by janisshort1
Replied by janisshort1 on topic Doptelet
I have been on it for 3 months. My numbers have been as low as 25 and high as 179. I’ll take it because prior to Doptelet they were in single digits. Once they stabilize they’ll take me off it. I was put on Cellcept at the same time. I will probably stay on Cellcept though 
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3 years 3 months ago #72458 by Toby-Wan-Kenoby
Replied by Toby-Wan-Kenoby on topic Doptelet
Inhaber switched to it a month ago. Did not do much for me. But almost nothing does. My base levels 2. NPlate and Cortision works best and we are trying that again. 
Diagnosed 7/2019 let the fun begin...
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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