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It would appear I have lost my response to Eltrombopag

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4 years 2 months ago #71714 by momto3boys
Replied by momto3boys on topic It would appear I have lost my response to Eltrombopag
48 is definitely about the same thing as 50. Hopefully they won't hold you to an arbitrary fencepost if you are doing generally well otherwise. I would also be fighting to not increase the dose in the hopes of achieving some stability. Keep us posted and hang in there!
The following user(s) said Thank You: mrsb04
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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4 years 1 month ago #71760 by mrsb04
Replied by mrsb04 on topic It would appear I have lost my response to Eltrombopag
Count holding at 49. Still on 325mcg of Romi. Promoted to monthly bloods
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4 years 1 month ago #71763 by CindyL
Replied by CindyL on topic It would appear I have lost my response to Eltrombopag
That is good news, mrsb.
The following user(s) said Thank You: mrsb04
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4 years 1 month ago #71764 by MelA
Replied by MelA on topic It would appear I have lost my response to Eltrombopag
That is super mrsb!!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: mrsb04
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4 years 1 month ago #71772 by momto3boys
Replied by momto3boys on topic It would appear I have lost my response to Eltrombopag
Sounds great. Hopefully you will continue with counts in that range!
The following user(s) said Thank You: mrsb04
  • mrsb04
  • Topic Author
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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4 years 1 month ago #71775 by mrsb04
Replied by mrsb04 on topic It would appear I have lost my response to Eltrombopag
I sure hope so Mom I don't want to have to increase my dose.
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4 years 1 month ago #71783 by poseymint
Replied by poseymint on topic It would appear I have lost my response to Eltrombopag
Mrs B~ You are in the perfect sweet spot right around 50. Hope it holds steady! :) I get weekly labs and somehow mine got lost this week- arg. I think my counts were low so maybe just as well to not know- I don't want to raise my dose either.
The following user(s) said Thank You: mrsb04
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4 years 4 weeks ago #71802 by scs2521
Replied by scs2521 on topic It would appear I have lost my response to Eltrombopag
Hi, so sorry about the lost response. Same thing happened to my daughter 4 years ago. Fortunately Nplate became available as self-administered and that has been working for her ever since (fingers crossed).
The following user(s) said Thank You: mrsb04
  • mrsb04
  • Topic Author
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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4 years 3 weeks ago #71808 by mrsb04
Replied by mrsb04 on topic It would appear I have lost my response to Eltrombopag
Last 2 counts  49 then 50, nice and stable. Haemo has given me a document to read regarding the PRN1008 trial. 
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4 years 3 weeks ago #71811 by CindyL
Replied by CindyL on topic It would appear I have lost my response to Eltrombopag
Happy to hear your counts are stable where you want them, mrsb!
The following user(s) said Thank You: mrsb04
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