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Supplements and Food interactions

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4 years 4 months ago #71255 by Fay
Supplements and Food interactions was created by Fay
I know that I have seen, many times, a list of foods and supplements, that can adversely affect platelet and bleeding.
Can anyone direct me to that page, because I'm having a hard time finding it. Thank you in advance!
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4 years 4 months ago #71259 by MelA
Replied by MelA on topic Supplements and Food interactions
I know what you are talking about Fay but I can't find it either - did last year I think it was but can't now. Will try again later.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: Fay
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4 years 4 months ago #71262 by Fay
Replied by Fay on topic Supplements and Food interactions
Thank you for trying to help!
  • midwest6708
  • Offline
  • ~ Janet ~ Diagnosed Sept. 2008
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4 years 4 months ago - 4 years 4 months ago #71263 by midwest6708
Replied by midwest6708 on topic Supplements and Food interactions
Apparently, the website has been "upgraded".
I think the info you want might be on this page ~ pdsa.org/outside-influences.html
which is a link buried on this page ~ pdsa.org/vitamins-supplements.html .
The following user(s) said Thank You: MelA, Fay
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4 years 4 months ago #71264 by MelA
Replied by MelA on topic Supplements and Food interactions
That's it - and it used to be a heck of a lot better when this current form was brand new! It had lots more foods on it then it does now. Thanks Janet - I probably hadn't gone through vitamins-supplements yet because food not mentioned.

Fay just remember not everything is for one that is for the other. I never really ate many tomatoes until reading the list of "don't eat" a number of years ago, then I craved tomatoes. That is no longer on the list - nor are onions, garlic. Does say cranberry juice, I drink at least 8oz of that a day.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: Fay
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4 years 4 months ago #71266 by Fay
Replied by Fay on topic Supplements and Food interactions
Thank you! Everyone is different for sure, And I have a pretty good grip on my problem foods. But always good to have that list on hand when we have a question. I know Curcumin , garlic and some others can be troublesome for me. I really appreciate your help!
  • midwest6708
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  • ~ Janet ~ Diagnosed Sept. 2008
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4 years 4 months ago #71267 by midwest6708
Replied by midwest6708 on topic Supplements and Food interactions
I've never really understood how someone can know what bothers them. Wouldn't you need to have a count done immediately each time after eating the food in question? How much of that food is too much? Would a cherry tomato in your winter salad be as problematic as daily bingeing on your juicy homegrown ones from July to October?
And then... How big a platelet drop justifies elimination of the food? It's all very complicated to me, which is why I never bothered to keep track of any of it.
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4 years 4 months ago #71268 by CindyL
Replied by CindyL on topic Supplements and Food interactions
I never paid any attention to the food list of no-no's unless it was something I didn't like! I ate/eat pretty much anything I want to.
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4 years 4 months ago #71269 by Fay
Replied by Fay on topic Supplements and Food interactions
In answer to midwest and others. Yes, it's very obvious to me, if something has caused a problem. For instance,
More than 1 dose of Pepto Bismol causes a lot of bleeding for me, and that is very obvious. If/when my counts are very low, I avoid onions and garlic
No, I don't rely on bloodwork for this, the results are very obvious for me. Thank you for finding this list, it's very helpful!
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4 years 4 months ago #71270 by momto3boys
Replied by momto3boys on topic Supplements and Food interactions

Fay wrote: In answer to midwest and others. Yes, it's very obvious to me, if something has caused a problem. For instance,
More than 1 dose of Pepto Bismol causes a lot of bleeding for me, and that is very obvious. If/when my counts are very low, I avoid onions and garlic
No, I don't rely on bloodwork for this, the results are very obvious for me. Thank you for finding this list, it's very helpful!


Just as an aside, Fay, Pepto Bismol is a big no-no to take with ITP. It has salicylates (same as aspirin) and will ABSOLUTELY drop your platelet count. If you are taking Pepto Bismol for stomach discomfort with certain food interactions, then you will almost surely be experiencing a platelet crash after eating those foods because of the Pepto, not necessarily the food.

For stomach discomfort, Immodium AD is okay with ITP, but definitely read up on drugs not to take with a bleeding disorder.
The following user(s) said Thank You: Fay
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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4 years 4 months ago #71271 by mrsb04
Replied by mrsb04 on topic Supplements and Food interactions
I'm with Cindy on this one.
I eat and drink what I want when I want and have never known anything I've ingested affect my count apart from 2 Clarithromycin tablets.
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4 years 4 months ago #71272 by MelA
Replied by MelA on topic Supplements and Food interactions
I'm sure some people do have a difference in count with some foods, especially if eaten often and a good amount, and some meds. It was odd how baby aspirin increased my count after each total knee replacement - count was checked a couple times after - but then went down a week or 2 after I stopped taking it. I do stay away from any NSAID and aspirin [unless a must to take as with my knee surgeries] or anything with aspirin in it. I would definitely stay away from the Pepto though Fay, you know it makes you bleed!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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4 years 4 months ago - 4 years 4 months ago #71273 by Fay
Replied by Fay on topic Supplements and Food interactions
Thank you to everyone who showed concern. FYI -I do know that aspirin, Pepto Bismol and the like may cause bleeding.
I was replying to one of our members who didn't understand how we would know if the product caused a problem.
For me, I don't need a blood count to know because it causes me to bleed and have Petechiae. Everyone is different, that's one
reason why this disease is so complicated. This list definitely is a help!
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4 years 4 months ago #71278 by ImPatient
Replied by ImPatient on topic Supplements and Food interactions
When I was diagnosed, I tried to reduce foods and supplements that may affect my platelets badly, and increase those that would help. I had blood counts almost every week, when it was bad more often. Food and vitamins didn't really seem to matter in my case, at least not over a short period of time. I still believe that my lack of natural vitamin b12 may have played a role because I was strictly vegan 17 years. That is a really long time not to watch that and it's improving now.
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4 years 4 months ago #71279 by Fay
Replied by Fay on topic Supplements and Food interactions
That's very interesting!
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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4 years 4 months ago #71285 by mrsb04
Replied by mrsb04 on topic Supplements and Food interactions
When I had high levels of B12 it made no difference to my counts.
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4 years 4 months ago #71286 by Fay
Replied by Fay on topic Supplements and Food interactions
Everyone has a different reaction to these supplements. When I have a bleeding problem, I take vitK. It usually does help
with the bleeding but not for my platelet count. So confusing.
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4 years 4 months ago #71292 by MelA
Replied by MelA on topic Supplements and Food interactions
Can't imagine why vitamin B12 would have anything to do with a platelet count. Maybe vegan did? Saw a man in London who was on a macrobiotic diet, he looked dead but with a yellow tinge - my friend who was on a macrobiotic diet got to the point where her organs were shutting down & she finally came to her senses and quit that diet.

Fay did I read that you had a bleeding disorder and ITP? I can't find the post so maybe I'm mistaken.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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4 years 4 months ago #71294 by Fay
Replied by Fay on topic Supplements and Food interactions
Yes, I am diagnosed with chronic ITP.
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4 years 4 months ago #71304 by MelA
Replied by MelA on topic Supplements and Food interactions
Thanks Fay - knew you had ITP, just wasn't sure if you had another bleeding disorder too.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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4 years 4 months ago #71312 by ImPatient
Replied by ImPatient on topic Supplements and Food interactions
Mel- I thought low b12 = low platelet production in the bone marrow. But as said I imagine if that is so, it is due to years of deficiency. And now I'm not sure anymore anyway, because mine dropped for seemingly no reason...
The following user(s) said Thank You: MelA
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4 years 4 months ago #71315 by MelA
Replied by MelA on topic Supplements and Food interactions
ImPatient - I didn't know that - did some searching and came up with:

www.itpsupport.org.uk/images/downloads/american_perspectives/50.pdf
Severe deficiencies of vitamin B12 or folic acid and excessive alcohol can cause low platelet counts. But these are extreme conditions that occur very rarely.

medlineplus.gov/ency/article/000586.htm
Your bone marrow may not make enough platelets if you have any of the following conditions:
-Vitamin B12 deficiency
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: ImPatient
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4 years 4 months ago #71316 by ImPatient
Replied by ImPatient on topic Supplements and Food interactions
Hey Mel- yeah that's what I meant, only with very strict and very long vegan diets. I also have platelet specific antibodies though, so maybe I was indeed wrong and it's caused by something else. I wanted to believe it, because just adding animals products to my diet would've been such an easy solution right.
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4 years 4 months ago - 4 years 4 months ago #71317 by ImPatient
Replied by ImPatient on topic Supplements and Food interactions
What I didn't see in these links, but read somewhere else before: The liver can store b12 5-9 years. In case that is interesting for somebody. So being vegan for a few years probably doesn't matter. I didn't have any health problems until I did this for about 13 years (and then continued 4 more).
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4 years 4 months ago #71318 by MelA
Replied by MelA on topic Supplements and Food interactions
I knew it was water soluble & what the body didn't use was pee'd out - but I didn't know it was stored in the liver. Interesting.

medlineplus.gov/ency/article/002403.htm#:~:text=Vitamin%20B12%20is%20a%20water,for%20years%20in%20the%20liver .
Vitamin B12 is a water-soluble vitamin. Water-soluble vitamins dissolve in water. After the body uses these vitamins, leftover amounts leave the body through the urine. The body can store vitamin B12 for years in the liver.Feb 2, 2019
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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