Platelet Disorder Support Association

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!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Hello

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5 years 5 months ago #68976 by Chooch
Hello was created by Chooch
Hi there, i'm new to the group having stumbled across it thankfully while searching for low platelet information. Im a 51 yearold male with a current pc of 34 ( which is falling week to week ). My doctor picked up on it during a routine blood count and after liver scan and CT scan which thankfully came back with no underlying issues that might have been the reason for my low platelet count i am now stuck in limbo as to what to do next really. I suffered from a mouth blood blister last week, which id assume would be a sign of my condition.

Any advice as to what to do next with regards to my GP who doesnt seem that concerned greatfully appreciated.

Justin
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5 years 5 months ago #68978 by MelA
Replied by MelA on topic Hello
You are in the UK - mrsb is too and she will see your post and respond - she's got a lot of knowledge.

However I would say that if I were you I would want to be seen by a hematologist - can you make that happen?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: Chooch
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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5 years 5 months ago #68981 by mrsb04
Replied by mrsb04 on topic Hello
She certainly will.
Hi Justin
Send me private message (top right under website help). I can send you links etc that don't work across the pond.
Cheers Anne
The following user(s) said Thank You: MelA, Chooch
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
5 years 5 months ago #68982 by mrsb04
Replied by mrsb04 on topic Hello
Justin
I've messaged you my email address
Anne
  • BabyG
  • Offline
  • I am the mother of a one year old, happy boy whose ITP is officially in remission. He was diagnosed at 10 months with a count of 2. Today he is around 360. I am grateful for this group and the comfort of knowing we were not alone on this rollercoaster
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5 years 5 months ago #68984 by BabyG
Replied by BabyG on topic Hello
Hello! I'm new to this group too, and as a mother to a one year old boy with ITP. His count is also 34 this week, which is better for babies than adults. You'll need a hematologist to help you with your treatment plan. Most regular doctors don't know enough about it. The blood blisters happened to my son when his count dropped to 2. He received IVIG treatment the night he was diagnosed. Thank God his pediatrician had heard of ITP before and knew who to connect us with. Good luck to you!
The following user(s) said Thank You: Chooch
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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