Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

my platelet fall from 36 to 34 this time,so sad

More
14 years 7 months ago #13060 by rainlyn
my platelet fall from 36 to 34 this time,so sad was created by rainlyn
im so dissapointed,pls help
More
14 years 7 months ago #13061 by deborahhartman
Replied by deborahhartman on topic my platelet fall from 36 to 34 this time,so sad
Mine were 28 two weeks ago, so now I am doing a four week infusion of Rituxan. I am also on 70 mg of prednisone a day. Not fun, but the doc seems to think this will work. I also have other autoimmune diseases that they need my count over 80 to treat. Know that you are not alone and others understand the frustration and disappointment of low counts.
More
14 years 7 months ago #13062 by CindyL
Replied by CindyL on topic my platelet fall from 36 to 34 this time,so sad
Going from 36 to 34 isn't anything to be disappointed about. It's not that big of a drop. Do you have serious symptoms like bleeding?
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
14 years 7 months ago - 14 years 7 months ago #13067 by Sandi
Replied by Sandi on topic Re: my platelet fall from 36 to 34 this time,so sad
Rain:

No one likes to see a drop, but going from 36 to 34 isn't much. Platelet counts can fluctuate that much in an hour, and when you get automated counts done there is a margin of error of about 5. Basically, 36 and 41 are the same count, and 36 and 31 are the same count. You are still in a safe range (above 30). :)
The following user(s) said Thank You: rainlyn
More
14 years 7 months ago #13076 by aurehsalla
Replied by aurehsalla on topic Re: my platelet fall from 36 to 34 this time,so sad
I'll second that - when i was initially hospitalised, i had counts over a course of 3 days ranging between 17 and 20. Now that i know how ITP works, none of those minor fluctuations were really a rise or a drop. I've gone from 32 to 34 in a space of 6 weeks - that's not a raise, I've just stopped dropping (i have friends who have taken this to be a massive improvement, when it's just me staying put). You always need to look at counts in relation to several previous ones. if they've all hovered between 30-40 then you can consider yourself relatively stable - if they've been yo-yo-ing between 10 and 100 then you could consider it either a rise or a drop - but for the timebeing, try not to over analyse the fractional differences. It can be as basic as the time of day they're taken or how recently you've eaten.
  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
More
14 years 7 months ago #13079 by Angel85
Replied by Angel85 on topic Re: my platelet fall from 36 to 34 this time,so sad
I wouldn't be concerned about a two point drop in counts,as long as you don't have bleeding symptoms, it is nothing to be worried about
More
14 years 7 months ago #13080 by debbied
Replied by debbied on topic Re: my platelet fall from 36 to 34 this time,so sad
When I get a count done, they repeat anything under 70,000. Last time the first count was 36,000 so they repeated it and the next one (two minutes later) was 41,000. I agree that a difference of 2,000 is nothing to worry about.
More
14 years 7 months ago #13084 by rainlyn
Replied by rainlyn on topic Re: my platelet fall from 36 to 34 this time,so sad
no cindyl i dont have any bleeding or even a spot,and i feel better i can still do my obligation as a mom,i can do household still,
More
14 years 7 months ago #13085 by rainlyn
Replied by rainlyn on topic Re: my platelet fall from 36 to 34 this time,so sad
ty guys,i dont have any bleeding or even a red spot,i feel better and i can still do households,im just a little worried why it tooks a long time before it back to normal,because my previous tooks only a week after my platelet transfusion and my count is back to normal,not like now its 1 monh already and it seems nothings change,my haema suggest me to have a spleenectomy or an injection,but i cant afford those kind of treatment thats why she only gave me oral medication,but even before im only taking prednisone and everythings back to normal after 1-2weeks,just wondering why??;) :dry:
More
14 years 7 months ago #13203 by tlmons
Replied by tlmons on topic Re: my platelet fall from 36 to 34 this time,so sad
I hear you. I'm new to this too. I HATE going in for blood tests. I always try to feel optimistic because I'm feeling good. Then I find its gone from 37 to 16. (yesterday)! I'm still confident it will build up again. I am getting over a cold and my dr told me that a virus will bring down my platelets. Also working out, I guess. Now, I can only walk. :huh: I figure that I'm not in any pain and I'm actually feeling perfectly normal and healthy, I'm not going to complain too much. Just move carefully. I'm working on altering my diet too. Whatever works, right. Hang in there, Rainlyn. Life is crazy, huh.:S
More
14 years 7 months ago #13210 by rainlyn
Replied by rainlyn on topic Re: my platelet fall from 36 to 34 this time,so sad
hi timons,youre right,we just feel the same hahaha everytime i go to see have my bloodtest i feel so nervous,wondering if it raise or my counts fall,haissst,sometimes i feel crazy,but were lucky that we feel great and feel healty
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use