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Pregnancy and itp

  • Kelirae24
  • Topic Author
  • Offline
  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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13 years 2 weeks ago #28004 by Kelirae24
Pregnancy and itp was created by Kelirae24
I'm not pregnant but one day want to be has anyone had success with having a bad case where your not at 40 but like 3 or 5 with no treatment ? Ivig was working every two weeks for me but now it's lasting about five days. I'm going back on nplate to save the ivig for an unexpected emergency treatment. I am on the hospital right now with a count of 3 and hemoglobin of seven due to a ridiculous period that won't stop a gynecologist just came in and I had made a comment that one day I would like to have my own children and he said don't take my card. To be honest struck me badly I've always wanted kids and wasn't happy with that response at all. Thanks guys any help would be appreciated
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 weeks ago #28009 by Sandi
Replied by Sandi on topic Pregnancy and itp
Keli:

How discouraging! My thought is: by the time you are ready to have a child, your situation might have changed or treatments might get better. You never know. If not, there are specialists who should be willing to take on a high risk patient.
  • Kelirae24
  • Topic Author
  • Offline
  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
13 years 2 weeks ago #28013 by Kelirae24
Replied by Kelirae24 on topic Pregnancy and itp
Thanks sandi I needed a lil good feedback lil I've been with my fiancé for nine years and we both want kids I'm hoping by 29 30 I pop into a remission or something to allow it
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12 years 11 months ago #28776 by Stefhnie
Replied by Stefhnie on topic Pregnancy and itp
Keli,

I found out I was pregnant with a count of 8k. I then went to a hatemotologist and he suggested dexamethasone of 40mg daily x 4 days to boost my counts, but i was not comfortable with the idea of the drug and we came to a compromise of taking prednisone at the minimum dose. The hatemotologist advised to start off with 30mg for a week and we watch and see, but since Ive always responded well, I have asked for a lower dose at 10mg. In 2 weeks my count went up to about 50k, then another 2-3 weeks of 7,5mg I was at about 80mg. The hatemo does not need to see me as long as my counts does not fall below 30k and I began to taper it off on my own - which is totally not recommended. My counts now stands in the 100s, I am 26 weeks.

Dont get discouraged. There must always be a way out albeit a more difficult and inconvenient.

Rgds
Steph
Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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