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Not to sure!

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14 years 7 months ago #13160 by BMercado
Not to sure! was created by BMercado
Hello everyone, Im a lil scared and would love some advise. I have had itp for 4 years have a healthy toddler. Got diagnosed with ITP when he was 1 year and a half.Pregnacy went great NO sign of ITP. Healthy pregnacy natural birth and now wanting another baby. Not to sure what to expect. I have been an many treatments and medications. Steroids, IVIGs had an allergic reation to the last one havent had another IVIG since, that would be 8 months ago. Now not to sure anyone please help with any advice, would be greatly appreciated.
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14 years 6 months ago #13888 by Crystal361
Replied by Crystal361 on topic Re: Not to sure!
Where are your levels sitting?

I found out about my ITP when I became pregnant with my son. I have only ever been treated with IVIG but if you had an allergic reaction to it I wouldn't suggest trying it again. Changes are you will have a worse reaction to it if you have it again.

My count with my first pregnancy hovered around 45 and with this pregnancy around 28. I don't have any symptoms though. I am fine sitting at this level the only concern would be delivery.
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14 years 6 months ago #13893 by tigereyes
Replied by tigereyes on topic Re: Not to sure!
I did rituxian November 2009. I found out I was pregnant in July 2010. Currenlty 38 weeks. My counts have been 30-40 throughout. With a slight bump up to 55. I usually respond really well to IVIG however because of the pregnancy I havent responded very well. I havent had to take steriods until this week as I am being induced tomorrow. You can have a safe vaginal birth with no epidural. So if you want to get pregnant talk to your doctors see what they advise. I am responding to steriods just high doses. So Im hoping for a safe delivery and that I can manage without pain meds.
Jennifer

Mother of 2 boys
Last Rituxan 12/09/09--3rd time around with not much sucess
Winrho-09/25/09 Didnt work.
IVIG--Countless times

Latest counts 8 4/2013-just started Promatca
Diag. 9/2006
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14 years 6 months ago #13909 by cloyd915
Replied by cloyd915 on topic Re: Not to sure!
My counts have been 3,000-149,000 (as of 3-28-11 I was 38,000) since Feb. I have been on high doses of Prednisone and IVIg weekly since with what I consider little improvement. I am followed closely and feel confident in my doctors. I would advise you to talk to your OB and PCP before starting your baby dance! Good luck!
Diagnosed with ITP 2/7/11
Treating regularly with IVIg
Currently in the low 100's
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
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