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New to this site... Looking for general info

  • laura.ann.stratton
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14 years 9 months ago #11126 by laura.ann.stratton
New to this site... Looking for general info was created by laura.ann.stratton
Hi there. I am 30 y.o. and was diagnosed with ITP two years ago. While currently in remission, i have serious anxiety about trying to get pregnant with ITP and staying healthy through pregnancy. I would love any support and stories about struggles or success... Right now, i feel like i cannot get the perspective to get excited about getting pregnant because I am so scared I will relapse. Thanks.
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14 years 9 months ago #11127 by srunge
Replied by srunge on topic Re: New to this site... Looking for general info
Hi and welcome, I was wondering how you came to be in remission? I have a teen daughter with ITP so I'm not very much help as far as knowing about pregnancy and ITP, but there are quite a few on here who have and babies with low counts and its seem to go pretty well for them.
I ask you about your remission because it's always nice to hear how others achieve remission, gives us hope.
Thanks, Shauna (mom to Emmy)
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 9 months ago #11132 by Sandi
Replied by Sandi on topic Re: New to this site... Looking for general info
Laura:

Think of it this way - a simple cold could cause a relapse. It might happen because of something you can't even control.

It would certainly be worth the risk if you really want a baby. If you relapse, you'd deal with it and life would go on. It's not the worst thing in the world.
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14 years 9 months ago #11134 by laura.ann.stratton
Replied by laura.ann.stratton on topic Re: New to this site... Looking for general info
Hi Shauna,

I had an acute onset in January 2009 (platelet count at 2000) which was treated with a blood transfusion, immunohemoglobulin transfusion, and three months of prednisone. I had a relapse nine months later with counts around 20,000 which was treated with six weeks of prednisone. Now I get my levels checked monthly and most recently they were 240,000 (highest ever)! All good news but I don't know that I ever fully wrapped my brain around the fact that i have ITP.
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14 years 9 months ago #11135 by laura.ann.stratton
Replied by laura.ann.stratton on topic Re: New to this site... Looking for general info
Sandi, that is what I know in my head but I can't quite accept it in my heart. That's the issue I a, working through. But I know you are right! Just trying to get there.......
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14 years 9 months ago #11179 by gsh
Replied by gsh on topic Re: New to this site... Looking for general info
Laura - I was diagnosed in 2009 when my baby was 8 months old. I had a bad ITP year with lots of treatments (many IVIg, decadron pulses, 2 pred tapers). After a year and the second pred taper, the ITP took a break and I went into remission. A few months later, I became pregnant (due in a few weeks now) and remission has held so far. I was so worried during that year that I wouldn't be able to have a second child but fortunately I got remission. I read a lot of papers about it and found that lots of women with various levels of ITP have had babies. It's not discouraged. Doctors told me my platelets would go down and others said they would go up with pregnancy. I believe either can happen. Like Sandi said - relapse can happen anytime by anything. If you're ready, maybe now is a good time to start your family while your ITP is good. Good luck!
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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