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Winrho.

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11 years 3 months ago #45901 by jenn44
Winrho. was created by jenn44
I need to make a decision today on whether to give Winrho. I'm very scared about this drug.My son's count is 1. Any thoughts please?

Thanks,
Jenn

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 3 months ago #45903 by Sandi
Replied by Sandi on topic Winrho.
Jenn:

Win-Rho used to be one of the easiest, side effect-free treatments available. It was given by injection over 3 to 5 minutes and people were sent on their way. Over the years, they began to realize that some people were having rare, serious reactions so they changed the method of administering the drug. Patients are now pre-medicaticated and the drug is given slowly by IV. All precautions are taken, and it is safer now than it has ever been. I wouldn't say it's the safest treatment there is, but it's certainly not the worst. Most people do fine with no side effects and if they respond, it can last a few weeks or months.

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11 years 2 months ago #45906 by eklein
Replied by eklein on topic Winrho.
What Sandi said, plus I'd also add that you might want to hear specifically from parents of children with ITP because our experience as adults might be very different.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 2 months ago #45915 by Sandi
Replied by Sandi on topic Winrho.
It might help if I put this in the right section, huh? :)

I haven't seen many children using this treatment lately though, so responses may be slim.

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.