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ITP and Lymphangiomatosis

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13 years 8 months ago #26468 by gingerjohnson
ITP and Lymphangiomatosis was created by gingerjohnson
My 3 year old grandson was diagnosed with ITP over a year ago and and has been receiving IVIG treatments since. He has also been on Rituxan. He has now been in the hospital for 3 weeks with bleeding and an enlarged spleen, and was diagnosed with Lymphangiomatosis. He has been on Beta Blockers for the past week and so far we have not seen any results, so they are wanting to start him on Vincristine. Any thoughts?

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13 years 8 months ago #26501 by Brandi
Replied by Brandi on topic Re: ITP and Lymphangiomatosis
No advice or anything but I do hope they get everything under control for him soon.
- Brandi
Mom of 3 amazing boys (ages 10, 5/dx ITP 01/2012, and 9 months old)

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13 years 8 months ago #26569 by jayfk20
Replied by jayfk20 on topic Re: ITP and Lymphangiomatosis
If you will write to us at the Lymphangiomatosis & Gorham's Disease Alliance - at support@LGDAlliance.org - we will try our best to provide information about your question.

Jack Kelly, LGDA
www.lgdalliance.org

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.