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Stressed out...

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13 years 3 months ago #25852 by bell1138
Stressed out... was created by bell1138
I wake up today July 4th and I find 2 new bruises on my 6 year old. I can't take this anymore. I'm always stressed out. I'm always checking her. I feel like I'm going crazy. I worry all the time. I'm constantly looking up other diseases online that cause low platelets. The doctor says its itp and all her other blood work is normal. I just want this to go away. I guess I just needed to vent a little.
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13 years 3 months ago #25897 by Crossroads514
Replied by Crossroads514 on topic Re: Stressed out...
I'm with you!! I've been there, done that! Until one night, my very brave 7 year old son broke down into tears. I hadn't realized until then how overbearing I was being. I was constantly checking him up and down for bruises and petechiae. He always heard us talking about it and was listening to "the numbers". I didn't consider what it was doing to him. He finally tearfully admitted that he thought if his "numbers" finally got to "0", he was a goner. 40's, 30's, 20's, uh oh... My constant inspections were only making it worse. I explained that it doesn't work like that. I promised him that I'd quit hovering over him. Now, admittedly, I still manage to "inspect" without him realizing what I'm doing. My eyes quickly scan him when he's getting in the bathtub or I'll scratch him on the back with the ulterior motive of checking his back. Before we could stop him, he flipped off the sofa the other night (he is after all a 7 year old boy) and landed on a shoe. He had the ugliest bruise on his hip ever. But, as hard as it was, I didn't freak out! They are just kids. They are gonna have bruises anyway! Don't stress over a couple of new ones. Try to make life as normal as possible for her. ITP sucks!! Of that there is no doubt! But we have made it our mission to focus on things he can do, not can't do! Is ITP dangerous, potentially... but so is getting in the car and driving to get ice cream. Something bad "could" happen but it most likely "won't" happen. Hang in there! We're all here for you!!!
The following user(s) said Thank You: Ann
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13 years 3 months ago #25902 by Brandi
Replied by Brandi on topic Re: Stressed out...
I know how you feel. It is very hard to not freak out over every single bump and bruise. Some days are easier than others.

- Brandi
Mom of 3 amazing boys (ages 10, 5/dx ITP 01/2012, and 9 months old)
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 3 months ago #25908 by Sandi
Replied by Sandi on topic Re: Stressed out...
Crossroads - wonderful post!
The following user(s) said Thank You: Crossroads514
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13 years 3 months ago #25910 by bell1138
Replied by bell1138 on topic Re: Stressed out...
I really want to thank everyone for taking te time to reply. I'm glad to know that there are other out there that identify with me. I wish everyone the best in this difficult time. God bless...
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13 years 3 months ago #25913 by laura1980
Replied by laura1980 on topic Re: Stressed out...
I'm right there with ya bell...I constantly think about my sons dwindling platlet counts...we go in Monday for anuthr, and while I am hoping for the best I can't help but wonder how low is it this time!..iv goten a bit sneaky also with inspecting his body as I don't wana scare him anymore than he proly already is...iv reasured him he's gona b ok and wer gona get thru this together! I hav to say some days it consumes my thoughts....but I hav goten a litl better the more I educate myself about itp, my son hasn't had problems with bleeding evn when he's as low as 5,000 as far as nose bleeds, gums, ect...so I find myself telling myself this could be much worse and focusing not so much on the bruises but all the positive things about each day, and take it one day at a time!! I believe wev chated on my page about our similar situations, stay strong and try not to worry so much, we will make it thru this!! Your daughter and family are in my prayers!!
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