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Rare Giant Platelets????

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14 years 3 weeks ago #23518 by aholt
Rare Giant Platelets???? was created by aholt
I got my daughters blood test back this week and the pathologist noted that "rare giant platelets were seen" Has anyone heard of this?? From the research that I found online looks like it is found in some cases of ITP but could also be releated to possible genetic issues.

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14 years 3 weeks ago #23523 by Tad Moody
Replied by Tad Moody on topic Re: Rare Giant Platelets????
Yep!

I have giant platelets.

I read somewhere that this may be a trait of people with ITP, along with having platelets that are extra sticky - sort of compensates for a low count: "quality" not quantity. These big platelets can sometimes throw off the platelet counting mechanism - the machine doesn't recognize them as platelets.

This is really weird disorder!

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14 years 3 weeks ago #23524 by aholt
Replied by aholt on topic Re: Rare Giant Platelets????
So is it more something that can just happen or she just had it and we just know about it now because of the constant blood tests?

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14 years 3 weeks ago - 14 years 3 weeks ago #23525 by Ann
Replied by Ann on topic Re: Rare Giant Platelets????
In platelet talk there seems to be a difference between large and giant platelets and ITP people should have large platelets and not giant ones or so I was told, although the odd few is neither here nor there.

Google for giant platelet syndrome to find out about it.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 2 weeks ago #23573 by Sandi
Replied by Sandi on topic Re: Rare Giant Platelets????
Bernard-Soulier Syndrome is an autosomal recessive inherited disease (both parents must carry the genetic trait) caused by a defect in platelet glycoprotein complex 1b-IX-V. In addition to thrombocytopenia, people with Bernard-Soulier Syndrome have very large platelets and platelet function defects that prompt much more bleeding at a particular platelet count than people with ITP.
www.ncbi.nlm.nih.gov/pubmed/21357716
www.medicinenet.com/bernard-soulier_disease/article.htm
emedicine.medscape.com/article/954877-overview

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