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4 month old son being treated for ITP but low WBC.

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14 years 4 weeks ago #23318 by Bonnielane82
Hi everyone. I have a 4 month old son that is being treated for ITP. Two weeks ago I noticed some small dots on his leg. Took him to urgent care where they did a CBC and his platelet level was 3000. Also the platelet size was small. Registering at 4. His WBC count was 7.8 then. So normal however since then it's been dropping. If the ITP is viral I guess that could affect the WBC as well? Or should I be pushing for different testing? If so what? Here is some history. Thank you for any help!! I'm so worried. Also everything I find online says the WBC count is normal low range. The hemo says its low but she still thinks its ITP. I'm just so confused. I don't know what questions to even be asking?

Healthy birth. He is baby #4. All his sisters are healthy as well.

Day 1: platelet count 3000 WBC 7.8 (admitted to hospital)

Day 3: count 3000 but platelet size was normal 8?
IVIG treatment given

Day 4: count was 35,000! WBC is 2? Go home:)

Day 6: count was 37,000 WBC was 6

Day 9: count was 19,000 WBC was 8

Day 11: IVIG treatment given count was 11,000 WBC was 4.6

So now we back in the morning for the results of the second treatment.

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14 years 4 weeks ago #23320 by crystal lee
Did they give steroids during IVIG treatments, like a push in the iv?

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14 years 4 weeks ago #23321 by Bonnielane82
Not that I know of. It was never mentioned to me. Thank you!

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14 years 4 weeks ago #23347 by crystal lee
Oh ok, than most likely not...My son uses steroids (prednisone) as a rescue when mouth bad, and his counts whenever on them white a little lower, when not on, he is perfect. So thought just maybe that was related. Good luck with your little guy!!

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  • april
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14 years 4 weeks ago #23351 by april
Bonnie,
So sorry that you and your little guy are going through this. Looking at his age, just wondering if the ITP appeared shortly after any vaccinations? Nearly all of them have the potential to cause ITP (you can find it listed as "thrombocytopenia" under "side effects for the professional"). The viruses in the vaccine (even if attenuated, or weakened), could account for the change in the WBCs, too. Especially given the number of vaccines that they're giving these days, all at once, and to an as yet, undeveloped immune system, it's little wonder that they cause problems. There are some homeopathic approaches that can help the body recover faster, if that's the case.

Hopefully he's just got it acutely. At least at his age it's still fairly easily to keep him safe. You may want to read on here and see other parents' experiences. Quite a few opt for the "watch and wait" approach, as the treatments are nearly always worse than the ITP itself. And, chances are good that he'll remit on his own, given his age.
April

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14 years 4 weeks ago #23353 by Bonnielane82
Thank you so much! YES! We decided to delay his shots. He had just gotten HIB the week before and PCV the day before the rash?? Could that make his platelets drop that fast?

Does ITP have any long term effects?

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  • april
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14 years 4 weeks ago #23354 by april
Hi Bonnie,

Yes, the vaccines can cause a big drop in the platelets fairly immediately in some people. Still, others will have a reaction some weeks later. It largely depends on the degree of susceptibility in your particular child. This can come from inherited weaknesses, environmental exposure and the current health of the child when getting their shot.

While I personally am not in favor of vaccinations, if you do decide to vaccinate, it's imperative to give only when your child is completely healthy. If they have even a cold or an earache or slight fever, they are at much higher risk to have an adverse reaction. Doctors SHOULD know this, and they SHOULD heed the contraindications given, but they very often ignore this important precaution. Never allow your child to be vaccinated if he is already ill, even if slightly. Some studies done a few years back showed that after a HIB shot was given, the level of immunity took a steep drop for the first week immediately after, so the child was actually at GREATER risk to get meningitis or other illnesses in that first week.

It seems that the vaccines most frequently cited as having some causal effect of ITP are the MMR and the Hep B shots. But, I've also seen quite a number who have said their ITP was triggered by a DPT or Tetanus shot. While these occurrences are still rather rare, in the whole scheme of life, if it happens to YOUR child, you are effected 100%!

Viral Meningitis

My , 2-year-old twins had been playing with our 2-year-old neighbor all week. She was the first to get quite ill, and my two were very sick, within a day. (BTW, the neighbor had been recently immunized, my kids had not—she was the first to get it, and gave it to my kids.) By the next day, my two older girls were also quite ill. The neighbor’s mom rushed her to the hospital, where she was admitted and a spinal tap was done (to ascertain whether or not it was a viral or bacterial meningitis-apparently, it took them 3 tries.). The mom said the whole experience was an absolute nightmare, and quite painful and traumatic for her daughter. But, it did show that it was the viral variety, which is far less serious.

In the meantime, I treated my kids with a homeopathic remedy, called Belladonna
(Note: Belladonna in the crude, herbal form is highly poisonous. But, when given in the highly diluted, nano-doses of a homeopathically prepared version, it is rendered completely safe and is fine to give to anyone, in potencies above 12C)

Belladonna was chosen according to the symptoms they had: Very high fever that had come on quite suddenly; bright red face; hugely dilated pupils, with a glassy look to the eyes, as well as being very sensitive to any light, noise or being jarred; and throbbing headaches. I’ll admit, I’ve rarely seen any of them appear sicker than this time. All four of them were lined up in my bed, shades drawn, no tv, stereo or even reading. They just lay there being sick. But, after 3 days of this, they were just as suddenly back to normal, you’d never even know they’d been ill. (This sudden onset and sudden recovery is a keynote of Belladonna.) Our neighbor, in the meantime, was not so lucky. Her mom, though she kept her on a highly regulated, organic diet, would have nothing to do with something crazy like homeopathy!
End result: My kids, treated homeopathically, were ill for 3 days, and came out of it with sunny dispositions
Neighbor girl: Very ill and in hospital for 2 weeks. She was convalescing for 1 1⁄2 months, and was in a very weakened state after leaving the hospital. She also had developed some debilitating fears around doctors and hospitals.

Spontaneous remissions are most common in young children, occurring in about 85% of children within the first month, is what I remember from reading about that.

Good luck with your baby!
April

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.