6 year old daughter newly diagnosed

Hello,

Let me start with an introduction...
My name is Jenna and I have 2 beautiful daughters; M is 9 weeks old and B is 6 years old. B was diagnosed 7 weeks ago with ITP. Like many of you, we notice bruising and took her to the hospital to figure out why. Her blood test revealed a count of 10 and they sent her to the Children’s Hospital. There they retested her and her count was 7. They started her on IVIG and within 4 days her count was 292! :woohoo: GREAT NEWS! But then at a 2 week follow up they were back down to 30. Since then they have been jumping and falling between 30 and 80 until New Year’s Day when they dropped to 10. So we went back to the Children’s Hospital. While there we found out that she is also IgA Deficient and IVIG was now not an option, as well as RhIG because she is Rh-. So we started to treat her with steroids. Her last dose was 4 days ago, and it initially brought her count to 190. Hopefully her numbers stay up, but we won’t find out until next week.
This has been such a stressful time for all our family. B doesn't understand that she is sick because she feels fine. All she wants to do is continue with her ice skating lessons, which is out of the question until her numbers are more stable (she falls a lot).
Is there anyone else out there with a child that is IgA Deficient and suffering from ITP?

IN the general discussion there are some kids that have the IgA deficiency. Hang in there my Daughter is 5 and has had it for 1.5 years. Good news is there is a high chance that she will out grow it. Doesn't make this time any easier but hold on to that hope. The most common treatments are the IVIG, WinRho and Steriods. After that, there are other options but typically they wait until you become a chronic patient. Also know that many of us on here have learned that numbers are just numbers. Reading her body will tell you what you need to know. I agree at this point Ice Skating might wait. Or let her do it after she takes the steriod and the numbers are high. At that age it is hard. Even other adults don't understand because our children do look just as healthy as the next. If you have questions, just ask...we are all here to help!