What should we do now???

I was told by my sons hematoligist that since he has no bleeding he can do everything he would do normally like gym and recess at school. My son is 4 as some of you know and well he very active and clumsy. He has had CAT Scans due to falling down and hitting his head. He has had tons of knots, bumps and bruises and his count is ridiculously low. He tried treatments and they all failed him. I am okay with not treating him since he isnt showing any signs of bleeding but my concern is his resuming gym and recess. I dont want to deprive him his right to be a normal 4 year boy, I want him to play with his class mates in recess and gym and form bonds with them that will last a lifetime. But at the same time I dont want him to get hurt doing these things. I mean he is 4 and its hard for him to decide what snack to have or what cartoon to watch, how can i feel confident that he will be able to decide what activities are too much for him when all of the kids are running and jumping and playing at school. I know others have walked or are walking in my shoes and I would just like some insight as to what worked for your child when it came to keeping them safe when they were away from you. I am very close to listening to my mother and requesting a helmet for him. But I think that my be worse then life with ITP. Please share any ideas you have and again thank you for reading my thoughts!

Well, as the mom of a boy who had no platelets for way too long, I say homeschool. :lol: We actually do homeschool so it's easy for me to say that. Keep in mind any friends he makes now will likely not be his friends when he's older. So I think "bonding" might be over rated in this situation. Probably the best you can do is tell his teacher/supervising staff what he is and isn't allowed to do and trust them to do it. Otherwise, truthfully, no one will ever take as good a care of your child as you will. That's just the way it is. You may want to invest in and learn how to use a 30C arnica for those bumps, bruises, and lumps he does get. It might be helpful right now.

My little boy is 5 his count stays between 1 and 6 i also was very wary about sending him back to school i felt that no one could watch him the way i do. He has been back since september and doing great and it has really amazed me how wonderful his friends have been with him especially in the playground if he has a little bump they take him straight to the teacher. I still find it a really nervous time as i am just waiting for the school to phone which they have on many occasions but i feel as long as the school take it seriously and put measures in place then for me it was the right decision. I hope all is well with your little one.