My 6 year old daughter was recently diagnosed with suspected ITP, after excessive bruising we made a trip to the Ped. Dr...her platelets were at 15,000 and the next day at 5,000. We were sent to childrens hospital for hemo/onocology. Even though we have multiple lymphnodes that are shotty and constantly have a temp of 99 to 99.8 the hemo dr diagnosed her with suspected ITP. She had the IVIG infusion, platelets came up to 49,000 overnight, 8 days into treatment we were at 163,000 however 10 days from the infusion we were back to 110,000 and are now at 72,000 three days later. I was curious about how well the IVIG has worked for others, my daughter had NONE of the side effects that so many have with IVIG. And being new to this suspected ITP, i wanted to ask if any others have times when their platelets hold at a certain level or rise on their own. I am getting a second opinion from St. Judes, I'm an RN and this worries me beyond belief as I'm sure it has and does anyone who has a child going through this.
