Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

18 month old with ITP and Neutropenia

More
14 years 6 months ago #14055 by kgulbernat
18 month old with ITP and Neutropenia was created by kgulbernat
Starting January 8, 2011 my son has been up and down with his platelet and neutrophil counts. The doctor has diagnosed as ITP, performed a bone marrow aspiration/biopsy which checked out fine, run other genetic testes, ANA tests, etc. and all appear fine. He checks out well on a physical exam, barely has signs of bleeding when his counts are as low as 10,000 and is active/healthy.

His was treated with IVIG twice without success and 2 rounds or Prednisolone that helped at first, but did not hold.

Anyone else had ITP with neutrophils affected too?

The doc thinks it is something immunological, but it's so hard to be going at this for 3 months without real answers.
More
14 years 3 months ago #16280 by ecarballo
Replied by ecarballo on topic Re: 18 month old with ITP and Neutropenia
My daughter is 5 years old and has been diagnosed with itp and it very healthy depsite the fact very similar to your son she has exerienced a lot of bruising because she is extremely active and very determined. we are now dealing with low neutrophil counts and are awaiting results I was just wondering since it has been a while since you have received your diagnosis for your baby what is possibly instore for mine because I am freaking out ....
  • server
  • Offline
  • newcreationchangingdaily
More
14 years 3 months ago #16291 by server
Replied by server on topic Re: 18 month old with ITP and Neutropenia
While I am a grown up with ITP I'd thought I'd chime in! Since I was diagnosed in 2/2010 I've had extremely high Neutrophils. Doctor has never mentioned anything about it so I don't know. I've asked and he's said it's nothing to worry about.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
14 years 3 months ago #16302 by Sandi
Replied by Sandi on topic Re: 18 month old with ITP and Neutropenia
KG:

Sometimes it takes a disorder a while to develop enough for a diagnosis. I know how hard it is to just wait, but that's all you can do for now. Sometimes it's good that they don't find anything! There is also a possibility that this is all temporary and will disappear. I wish you the best.
More
14 years 3 months ago #16665 by ananta
Replied by ananta on topic Re: 18 month old with ITP and Neutropenia
I am an adult and my platelets and white blood cells follow each other. I just finished a 4.5 year remission. Platelets were 17k and whites were 2.4 (4.2 -10 is normal). My hema treats the platelets and the whites follow along. Of course now I'm on prednisone which messes up the white count, so who knows where they are!
Moderators: jaycharness
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use