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TTP? Looking to make some friends.

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9 years 9 months ago #54868 by ahall11
TTP? Looking to make some friends. was created by ahall11
Hi-

My name is Addie and I am currently rounding up my recovery from TTP. I've tried to find groups for TTP specifically but everything seems to just be for ITP which is how I ended up here. I'm just looking to talk to some people who have had a similar experience to me as this has been a really hard road ( I spent the last 3 months in the hospital being poked and prodded which was not easy to handle at 23 years old).

If anyone wants to share it would be nice. Like I said, just looking to maybe make friends with similar experiences, possibly in the same age range. Most of my friends don't really understand what I went/am going through and its a bit frustrating.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 9 months ago #54869 by Sandi
Replied by Sandi on topic TTP? Looking to make some friends.
Hi Addie - you're welcome to stay, but we don't have much experience with TTP. We've had a few people with TTP over the years, but they don't stay long. TTP is much more involved than ITP and the treatments are different. ITP doesn't often require long hospitalization.

I admire your courage as I know that TTP can be very scary.

I found this forum, not sure if it's current.

www.mdjunction.com/thrombocytopenic-purpura

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.